Without his Medicaid coverage I would have lost my son years ago. But our healthcare has so much further to go. We need to have coverage for all including the disabled and including those facing end of life illness as they are people of value, are loved, and
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have a human right to care and comfort measures. No child should be forced to live in pain. No parent should be forced to spend hours fighting for authorization and ask for money from others when they should be with their child.
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I will always fight to
#ProtectOurCare. If anyone knows how to get coverage when denied numerous times from Indiana Medicaid for a Medication his Dr insists he needs please help. His physician should make this decision and not someone trying to meet a budget.pic.twitter.com/FkULiawjb6
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How much is the medication?
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The cost is $85 every 3-5 days. 5 if he only needs routine doses and 3 if he has an autonomic storm and requires an additional PRN dose which occurs at least 1x per day.
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Where is the crowd-funding for the medicine?
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https://www.gofundme.com/2adj198?pc=ot_co_dashboard_a&rcid=3651fd3abe3a47748655e31d4feec72a … This is the link to our gofundme we have had it for years where friends and family have given to his expenses and many are now helping through this link.
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Do you have a link to your fund? Hate that it has come to this but happy to spread the word. (I too have a special needs child on medicaid and understand the love/hate. If there is somewhere we can flood with msgs to try and get a review let us know)
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https://www.gofundme.com/2adj198?pc=ot_co_dashboard_a&rcid=3651fd3abe3a47748655e31d4feec72a … This is the link to our gofundme we have had for him for expenses throughout his life and some are donating now for the medication.
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Just donated and my thoughts and prayers are with you and Superman and your family.
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Thank you so much!
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Thank you for your strength and for sharing your beautiful boy.
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I’m so sorry you’re having to worry about the cost associated with making him comfortable, rather than devoting all your time and energy to being with and loving him. I was happy to help with a small donation. God be with you and your son.
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Thank you so incredibly much
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donated and sending lots of love from Canada 
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Thank you
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@Coltsmomma1 so sorry for this to happen to your family. If I can help or fight with the state of@VisitIndy let me know. Mayor etc -
Thank you!
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Married to my best friend!