Chordoma Foundation

@ChordomaFDN

Our mission is to improve the lives of those affected by chordoma and lead the search for a cure.

Durham, NC
Vrijeme pridruživanja: lipanj 2009.

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  1. Very proud of this talented team and very excited for the future of drug development.

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  2. As a patient-driven organization, our continued success depends on the initiative of supporters like you. To engage your friends and family in going "all in" for , consider hosting a Community Fundraiser. Our step-by-step guide can help.

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  3. proslijedio/la je Tweet
    prije 10 sati

    Tuesday is . The AACR brings together the greatest minds in cancer research to advance a scientifically bold agenda against the collection of devastating diseases we call cancer.

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    prije 10 sati
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  5. Power Patient Survey Shows Majority of Patients Willing to Participate in and Find Them Beneficial (but 43% of patients surveyed reported that trials were never discussed as an option by their medical teams)

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  6. proslijedio/la je Tweet
    29. sij

    Join us for at on February 28! This year’s event will feature discussions on personalized medicine, shortening the diagnostic odyssey, improving access to and more! Learn more about the event:

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    Dr. Mary Frances Wedekind talks about our specialty rare tumor clinics. In collaboration with our advocacy partners & , we host the clinic and clinic and bring patients to the to meet with a group of specialists

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  8. 27. sij

    Did you know you can donate tumor tissue to help advance research? If you are a chordoma patient in the US & have an upcoming surgery, consider donating your tissue to the CF Biobank. Contact repository manager Patty Cogswell patty@chordoma.org

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  9. 27. sij

    Almost 50 Non-Oncology Drugs Found to Kill Cancer Cells Scientists at the tested >4,500 drugs on 578 human cell lines & discovered that ~50 had previously unrecognized anti-cancer properties.

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  10. proslijedio/la je Tweet
    24. sij

    Research taking place into chordoma with

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  11. proslijedio/la je Tweet
    26. sij

    ⁩ experience of complex and . Presented Multispeciality working leading to better results for our patients. ⁦⁩ ⁦

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  12. 25. sij
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  13. 24. sij

    Thanks for sharing this story . Sending healing thoughts Allyson's way. After two surgeries to remove her , we're glad to hear about the thoughtful support. Good luck w/ radiation, Allyson! We're here if you need anything.

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  14. 24. sij
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  15. 23. sij

    NOW OPEN: Registration for the 2020 International Conf. Join us in Boston on July 17-18 to LEARN about the latest treatment advances, CONNECT w/ patients/families & TAKE ACTION against chordoma. Early-bird discount available until 5/15.

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    Welcome to the – the largest research hospital in America. This video is designed to give you an idea of what to expect as you enter the NIH campus.

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  17. 21. sij

    Tomorrow (1/22) is registration day for runners who want to participate in the Marathon on Sat. 5/16. Spots go fast so sign up early! Not a runner? Stay tuned for info about the annual dinner & celebration

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  18. 20. sij

    "We must accept finite disappointment but never lose infinite hope." - Dr. Martin Luther King, Jr. Thank you, Dr. King for inspiring people w/ your words and your actions. Your message of courage and compassion continues to catalyze communities around the world.

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  19. 20. sij

    Doctors & are still enrolling patients in a Phase1 studying the safety & initial effectiveness of drug w/ & w/out stereotactic radiosurgery in fighting chordoma.

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  20. proslijedio/la je Tweet
    20. sij

    Congrats to my DepMap colleagues! RT : ⚡️NEW CONTENT : Todd Golub and colleagues present the PRISM drug repurposing resource (). Read it here:

    , , i još njih 6
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