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Prikvačeni tweet
Receiving a diagnosis of a neurologic condition for your child can be life-changing. Our Family Support & Empowerment Program offers families a connection with a Peer Support Specialist to help them navigate disease diagnosis, treatment & management. https://www.childneurologyfoundation.org/fsep/ pic.twitter.com/Va3GL2cu9V
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Curious to learn more about CNF's work? Our "2019 - A Year in Review" document is a great place to start. Thanks to all of the incredible physicians, caregivers, patients, advocacy partners, nurses, industry partners & others who make our work possible. https://www.childneurologyfoundation.org/wp-content/uploads/2020/01/CNF_EOY-2019.pdf …pic.twitter.com/48aGFAxt2K
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Join team CNF! We're currently hiring for the position of Chief Operating Officer. Please share with your networks to help us find the best COO to support CNF's work in 2020 and beyond! https://workforcenow.adp.com/mascsr/default/mdf/recruitment/recruitment.html?cid=a8f5b8eb-8533-448f-9879-ec87a4c79cef&ccId=19000101_000001&type=MP&lang=en_US …
#COO#ChiefOperatingOfficer#weareallchildneurologypic.twitter.com/sczQNiqD5x
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Do you have questions about epilepsy surgery? CNF recently released "Surgery for Difficult-to-Treat Epilepsy: A Step-by-Step Guide for Patients and Families" to help families understand this complex procedure. https://www.childneurologyfoundation.org/wp-content/uploads/2019/11/CNF-Epilepsy-Surgery-Booklet.pdf …pic.twitter.com/FMDnHRKNMr
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Join team CNF! We're currently hiring for the position of Chief Operating Officer. Please share with your networks to help us find the best COO to support CNF's work in 2020 and beyond! https://workforcenow.adp.com/mascsr/default/mdf/recruitment/recruitment.html?cid=a8f5b8eb-8533-448f-9879-ec87a4c79cef&ccId=19000101_000001&type=MP&lang=en_US …
#COO#ChiefOperatingOfficer#weareallchildneurologypic.twitter.com/UiF3UfhebT
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Child Neurology Foundation proslijedio/la je Tweet
The first webinar in the "Challenges in Pediatric Neuroscience" series will be Jan 30, 2020, at 11 a.m. ET. Guest speakers will discuss how to get involved in clinical research at any stage of professional development. http://www.ninds.nih.gov/News-Events/Events-Proceedings/Events/Webinar-current-challenges-pediatric-clinical-neuroscience …pic.twitter.com/FvMlDOdK4k
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Child Neurology Foundation proslijedio/la je Tweet
Have you registered yet? The very first DEE-P webinar is happening this Wednesday, Jan 29th!
@TracyDixonSalaz will be giving an overview of#DEEs and we'll provide brief background on the#DEEProject: our mission, goals and partners. Register here --> https://tinyurl.com/DEEOverview pic.twitter.com/XWGjwvRlcv
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Great news for the
#CDKL5 community, on the approval to create an ICD-10-CM code for#CDD! Congrats to@CDKL5USA,#LoulouFoundation and the#CDKL5CentresofExcellence for your hard work on this proposal. CNF is proud to have offered our support.#weareallchildneurologyhttps://twitter.com/CDKL5USA/status/1222184840990035968 …Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Welcome to the Board! In late 2019, Dr. Scott Perry joined the CNF Board of Directors. Learn more about Dr. Perry on the CNF blog. https://www.childneurologyfoundation.org/welcome-to-the-board-dr-scott-perry/ …pic.twitter.com/CTWugZxiyH
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CNF recently had the opportunity to sign on to the
@AmEpilepsySoc's position statement on#SUDEP counseling. Read more about the position statement, and CNF's SUDEP resources on our blog. https://www.childneurologyfoundation.org/raising-sudep-awareness/ …#childneurology#weareallchildneurologyHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
We'd like to welcome Donald Pearl to CNF's Board of Directors. Get to know Mr. Pearl on the CNF blog. https://www.childneurologyfoundation.org/welcome-to-the-board-donald-pearl/ …pic.twitter.com/ikMP2eCHHp
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Trusting a new caregiver with your child's care can be difficult. The Respite Care Notebook is one way to help you feel confident that a new caregiver has all of the information they need so that you're able to take some time for yourself. https://www.childneurologyfoundation.org/programs/respite-care/ …pic.twitter.com/groVytgSlx
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The diagnosis & treatment management of a child with a neurologic condition can be life-changing. CNF's Peer Support program offers a direct connection with an experienced Peer Support Specialist to help navigate the journey with you & your child. https://www.childneurologyfoundation.org/fsep/ pic.twitter.com/DmiZ6xSaYj
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Child Neurology Foundation proslijedio/la je Tweet
Tonight I’ll be doing an interview with EF about working towards being a resilient caregiver. Join the conversation!https://tinyurl.com/ujfu6ph
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Last week, our partners at
@NeurelisInc announced@US_FDA approval of a nasal seizure rescue medication for ages 6 and above. It can be used, "for acute treatment of intermittent, stereotypic episodes of frequent seizure activity." Learn more via their press release. https://twitter.com/NeurelisInc/status/1216727193340055554 …Tweet je nedostupan.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Trusting a new caregiver with your child's care can be difficult. The Respite Care Notebook is one way to help you feel confident that a new caregiver has all of the information they need so that you're able to take some time for yourself. https://www.childneurologyfoundation.org/programs/respite-care/ …pic.twitter.com/XBxzzI0uxm
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Child Neurology Foundation proslijedio/la je Tweet
It was a pleasure talking with
@KellyGC411 and@CureEpilepsy about all the exciting therapies for#Dravet and the potential to extrapolate these advances to other epilepsies of genetic etiology!https://twitter.com/CureEpilepsy/status/1207367839721672704 …
1:22Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
The diagnosis & treatment management of a child with a neurologic condition can be life-changing. CNF's Peer Support program offers a direct connection with an experienced Peer Support Specialist to help navigate the journey with you & your child. https://www.childneurologyfoundation.org/fsep/ pic.twitter.com/U894v1lcTO
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Child Neurology Foundation proslijedio/la je Tweet
Proud of two of our BOD
@PedsEpilepsyDoc and@TheNotoriousEEG for the collaborative work they do’@Child_Neurologyhttps://twitter.com/TheNotoriousEEG/status/1204045507385008129 …
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Have you thought about how your child will transition into adulthood and manage their medical needs? CNF has collaborated to create a toolkit for parents, patients, and clinicians to make the transition process as smooth and organized as possible. https://www.childneurologyfoundation.org/transitions/ pic.twitter.com/mtw9kRDUiy
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We've got a new booklet to help educate patients and caregivers about surgery as a treatment for epilepsy! Come grab a few at our booth #917 at
#AES2019 or check it out online - https://bit.ly/2Rcqfp7 .Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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