Child Neurology Foundation

@Child_Neurology

CNF is a national non-profit working through advocacy, research and education to ensure optimal care for children living w/neurologic conditions

Minneapolis, MN
Vrijeme pridruživanja: prosinac 2012.

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  1. Prikvačeni tweet

    Receiving a diagnosis of a neurologic condition for your child can be life-changing. Our Family Support & Empowerment Program offers families a connection with a Peer Support Specialist to help them navigate disease diagnosis, treatment & management.

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  2. Curious to learn more about CNF's work? Our "2019 - A Year in Review" document is a great place to start. Thanks to all of the incredible physicians, caregivers, patients, advocacy partners, nurses, industry partners & others who make our work possible.

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  3. Join team CNF! We're currently hiring for the position of Chief Operating Officer. Please share with your networks to help us find the best COO to support CNF's work in 2020 and beyond!

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  4. Do you have questions about epilepsy surgery? CNF recently released "Surgery for Difficult-to-Treat Epilepsy: A Step-by-Step Guide for Patients and Families" to help families understand this complex procedure.

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  5. Join team CNF! We're currently hiring for the position of Chief Operating Officer. Please share with your networks to help us find the best COO to support CNF's work in 2020 and beyond!

    Poništi
  6. proslijedio/la je Tweet
    21. sij

    The first webinar in the "Challenges in Pediatric Neuroscience" series will be Jan 30, 2020, at 11 a.m. ET. Guest speakers will discuss how to get involved in clinical research at any stage of professional development.

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  7. proslijedio/la je Tweet
    28. sij

    Have you registered yet? The very first DEE-P webinar is happening this Wednesday, Jan 29th! will be giving an overview of and we'll provide brief background on the : our mission, goals and partners. Register here -->

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  8. Great news for the community, on the approval to create an ICD-10-CM code for ! Congrats to , and the for your hard work on this proposal. CNF is proud to have offered our support.

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  9. Welcome to the Board! In late 2019, Dr. Scott Perry joined the CNF Board of Directors. Learn more about Dr. Perry on the CNF blog.

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  10. CNF recently had the opportunity to sign on to the 's position statement on counseling. Read more about the position statement, and CNF's SUDEP resources on our blog.

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  11. We'd like to welcome Donald Pearl to CNF's Board of Directors. Get to know Mr. Pearl on the CNF blog.

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  12. Trusting a new caregiver with your child's care can be difficult. The Respite Care Notebook is one way to help you feel confident that a new caregiver has all of the information they need so that you're able to take some time for yourself.

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  13. The diagnosis & treatment management of a child with a neurologic condition can be life-changing. CNF's Peer Support program offers a direct connection with an experienced Peer Support Specialist to help navigate the journey with you & your child.

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  14. proslijedio/la je Tweet
    15. sij

    Tonight I’ll be doing an interview with EF about working towards being a resilient caregiver. Join the conversation!

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  15. Last week, our partners at announced approval of a nasal seizure rescue medication for ages 6 and above. It can be used, "for acute treatment of intermittent, stereotypic episodes of frequent seizure activity." Learn more via their press release.

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  16. Trusting a new caregiver with your child's care can be difficult. The Respite Care Notebook is one way to help you feel confident that a new caregiver has all of the information they need so that you're able to take some time for yourself.

    Poništi
  17. proslijedio/la je Tweet

    It was a pleasure talking with and about all the exciting therapies for and the potential to extrapolate these advances to other epilepsies of genetic etiology!

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  18. The diagnosis & treatment management of a child with a neurologic condition can be life-changing. CNF's Peer Support program offers a direct connection with an experienced Peer Support Specialist to help navigate the journey with you & your child.

    Poništi
  19. proslijedio/la je Tweet
    9. pro 2019.
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  20. Have you thought about how your child will transition into adulthood and manage their medical needs? CNF has collaborated to create a toolkit for parents, patients, and clinicians to make the transition process as smooth and organized as possible.

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  21. We've got a new booklet to help educate patients and caregivers about surgery as a treatment for epilepsy! Come grab a few at our booth #917 at or check it out online - .

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