Charissa Frank

@CharissaFrank

Pres. EDS HSD, Marfan LD&Connective Tissue - Rare Disease Patient Advocate - ePAG ERN ReCONNET/VASCERN ♿ (words are mine own)

Belgium
Vrijeme pridruživanja: veljača 2009.

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  1. proslijedio/la je Tweet
    5. pro 2019.

    📌Save the date! first live for healthcare professionals "The real roles of Vitamin D in " by professor Maurizio Cutolo on 10th December 1:30 PM (CET)🕜 ➡️Register here:

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  2. proslijedio/la je Tweet
    25. stu 2019.
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  3. 14. stu 2019.

    Auto weer in panne en wordt gesleept naar garage. Auto nieuwgekocht in 2016 en van dag 1 electric problemen. Leuk weer weken thuis met rolstoel!

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  4. proslijedio/la je Tweet
    13. stu 2019.

    It wasn't easy getting >90 participants into one picture but we got pretty close with these 2!📸 Thanks again to all: , professionals and ! Full article + more soon!

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  5. proslijedio/la je Tweet
    8. stu 2019.
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  6. proslijedio/la je Tweet
    7. stu 2019.

    The VASCERN Group is having individual session! Talking integration of ERNs in national healthcare system + the patient's role!

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  7. proslijedio/la je Tweet
    7. stu 2019.

    At . 5 rare diseases gathered to make an impact on patient care in Europe.

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  8. proslijedio/la je Tweet
    7. stu 2019.
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  9. proslijedio/la je Tweet
    7. stu 2019.

    dinner now underway after a long day of meetings! Well done to all! 😊

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  10. 7. stu 2019.

    Juergen Grunert presenting the ePAG feedback and new developments -dietz

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  11. proslijedio/la je Tweet
    6. stu 2019.

    The VASCERN is out! 😁🎉🙌 In this edition: is happening tomorrow (we will ) 😀, 16 new Pills of Knowledge () from the study day, updates on the Bakoumba project + more!

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  12. 7. stu 2019.

    Interesting programs including Networking Funding with calls coming by end year beginning 2020. I will participate in the panel for Networking funding.

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  13. 6. stu 2019.
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  14. 2. stu 2019.
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  15. 27. lis 2019.

    Expert Panel Consensus Meeting on Patient's Pathways @ Scuola Superiore Sant'Anna

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  16. proslijedio/la je Tweet
    20. ruj 2019.
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  17. proslijedio/la je Tweet
    20. ruj 2019.

    Today Steering Committee Meeting in Brussels. We wish them a good day!

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  18. proslijedio/la je Tweet
    6. ruj 2019.

    European EDS meeting at Rome. Representing VASCERN. ⁦⁩ ⁦⁩ ⁦⁩ ⁦⁩ ⁦

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  19. 2. ruj 2019.

    Heeft u problemen en moeilijkheden om toegang te krijgen tot een behandeling voor uw zeldzame ziekte aandoening? Volledig dan deze enquête van EURORDIS voor uw antwoord vóór 30 september 2019. Hartelijk dank....

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  20. 30. kol 2019.
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