CF Voices

@CfVoices

Aiming to understand the impact of treatment with CF modulators on patient’s families and carers, to give them a voice within the healthcare system in England.

UK
Vrijeme pridruživanja: studeni 2019.

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  1. 4. velj

    Great to see strong support in the NICE scoping meeting for Trikafta. There was a shared sense of urgency from the clinicians to get patients access as soon as possible. We're starting our work to represent carer's quality of life in the appraisals of these drugs.

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