Genetics and SocietyOvjeren akaunt

@C_G_S

Center for Genetics and Society, encouraging responsible uses & effective societal governance of human & reproductive technologies

Vrijeme pridruživanja: veljača 2009.

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  1. Prikvačeni tweet

    1/5 Today, we are proud to announce the publication of the "Geneva Statement on Heritable Human Genome Editing: The Need for Course Correction” in Trends in Biotechnology.

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  2. proslijedio/la je Tweet
    5. velj
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  3. "An important point gets left out of the cheery ads: There’s not enough science to justify using stem cells for any of the advertised conditions, including joint pain. None of the treatments advertised have been approved by the U.S. [FDA]."

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  4. "If you want to address poor people getting sick and dying while the wealthy aim towards living forever, increase access to health care, and improve working and living conditions." - in

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  5. Human germline modification is a reproductive justice issue. Learn why w/ materials from & that situate germline modification within the context of historical attempts to control the reproductive lives of , , & people.

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    3. velj

    I know: a lot is happening lately. But if you are interested in gene editing debates and/or bioethics & justice, reproductive technologies - or genetic modifications of humans - check out our group initiative. Increasingly, it has everything to do with liberal AND state eugenics.

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    Read the Geneva Statement on Heritable Human Genome Editing, where Marcy Darnovsky, Katie Hasson () and many other leaders call for a course correction in discussing human genome editing:

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    31. sij
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  9. 5/5 For more information on how the statement came about, see today's blog post.

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  10. 4/5 We would like to express our gratitude to the authors and to the Brocher Foundation for hosting the workshop where the statement was developed and for sponsoring the open-access license.

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  11. 3/5 The Geneva Statement brings new voices and perspectives—particularly those of social scientists, advocates, and representatives—to a conversation that has been dominated by and bioethicists.

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  12. 2/5 The statement's authors point to the need to clarify misrepresentations, center societal concerns, & foster meaningful public deliberation on the potential uses of this technology.

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  13. , , and public opinion need to work together. Could this recent spate of stories indicate that we are reaching a tipping point?

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  14. "We may be a long way from reining in the technology behemoths that look to exploit our preferences... but informed skepticism about accuracy, surveillance, and manipulation would be a good start."

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    28. sij

    So important for patients to understand whose interests are being served — e.g. this link shows how the industry pours money into groups and uses their funding power to advance their business growth agenda

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    28. sij

    It was an honor to interview the brilliant Alondra Nelson on the new episode of The Received Wisdom! We talk about how ancestral DNA testing is shaping both African American identity and policy. (And and I answer listener questions!)

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  17. "It will be up to citizens themselves to make clear to those who wield power in their names that they do not wish to live under the gaze of a genetic panopticon."

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  18. Sales of at home DNA test kits may have slowed resulting in layoffs, but that hasn't stopped 23andMe from pursuing drug discovery.

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    POSTnote alert: Human germline genome editing🔬 In 2018 a scientist claimed to have performed genome editing in embryos, which resulted in the birth of twin girls. What gene editing techniques exist currently? How are they regulated? Find out here:

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  20. proslijedio/la je Tweet
    23. sij

    Thank you for this great work on such an important topic! There Still Aren’t Any Rules Preventing Scientists From Making Gene-Edited Babies by in

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