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Profil korisnika/ce CZEdwards
CZEdwards is somewhat away from keyboard
CZEdwards is somewhat away from keyboard
CZEdwards is somewhat away from keyboard
@CZEdwards

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CZEdwards is somewhat away from keyboard

@CZEdwards

Sophia Invicta. Nontheist Quaker, lost Peace. PsyD, CBT, PTSD. I write #hopepunk: Rien’s Rebellion, Fantasy. See my site. Major DIY begins 1/28/20

Bad Orb, Hesse, Deutschland
czedwards.com
Vrijeme pridruživanja: srpanj 2008.

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    CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
    • Prijavi Tweet

    The good thing about being the oldest child and getting custody of the first person in the family in decline: I’m already done. The bad thing about it: the sibling who has the job now with #2 in decline is going through all the same fuckery. My life pro tips, in a thread.

    19:19 - 6. sij 2020.
    • 90 proslijeđenih tweetova
    • 264 oznake „sviđa mi se”
    • Untitled Moose Game Attention Deficit Hyperactivity Oat OnMyPlate Liz Dinsmore Dan Ellis Oh Joy! Delanie Oh So Aud(rey) durp
    20 replies 90 proslijeđenih tweetova 264 korisnika označavaju da im se sviđa
      1. Novi razgovor
      2. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        1) if you’re responsible for your person, you MUST have a signed Medical Orders for Scope of Treatment, aka Living Will or Advance Directive. It should be specific, including use of antibiotics, nutrition, palliative care. Talk about it even if it’s uncomfortable.

        5 replies 11 proslijeđenih tweetova 108 korisnika označava da im se sviđa
        Prikaži ovu nit
      3. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        2) watch the bank accounts. Keep the cards/checkbook with you. Get receipts for everything. Pay their bills for them, using online banking. If they need cash, you bring it to them. Be comfortable with having someone else be your auditor. If someone challenges, show documents.

        1 reply 3 proslijeđena tweeta 94 korisnika označavaju da im se sviđa
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      4. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        3) If you see something weird, don’t sit on it. If there’s money missing you can’t explain, start poking. If there’s an arrangement that doesn’t make sense, stand up for your person. If the explanation for the arrangement doesn’t ring? Contact Adult Social Services.

        1 reply 3 proslijeđena tweeta 94 korisnika označavaju da im se sviđa
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      5. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        4) Get your person as used to technology as their maximum capability allows, as early as you can. If your person is in a place where they can learn to use Instacart and/or Postmates, this is to their advantage. But even the ability to use Netflix is better than cable.

        4 proslijeđena tweeta 96 korisnika označava da im se sviđa
        Prikaži ovu nit
      6. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        4a) commercials are *bad* for dementia — they break concentration, they’re loud and jarring, they often sell complete bullshit. Your person is better off binge-watching 10 seasons of Bones than all of Food Network or Crime TV.

        7 proslijeđenih tweetova 150 korisnika označava da im se sviđa
        Prikaži ovu nit
      7. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        5) there comes a point where you’re more concerned about your person eating anything, rather than *what* they’re eating. If a daily chocolate shake and a burger makes them happy and gets food into them? Go with it. Quality of life matters when there’s not much left.

        4 proslijeđena tweeta 164 korisnika označavaju da im se sviđa
        Prikaži ovu nit
      8. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        6) Remember your person can be an unreliable narrator. They’re not lying. Memory slips are a thing, and logic can get strange. They’re scared and feeling out of control, because they are. Getting old is not for amateurs. They will make as much sense of their world as they can.

        1 reply 8 proslijeđenih tweetova 125 korisnika označava da im se sviđa
        Prikaži ovu nit
      9. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        7) OTOH, if your person seems out of character, pay attention. Disorientation is a sign of infection and/or dehydration, often before you can find a fever or see any other signs. Urinary tract infections & pneumonia hit fast and hard and they’re common.

        6 proslijeđenih tweetova 117 korisnika označava da im se sviđa
        Prikaži ovu nit
      10. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        8) Outsource. Your teenager wants driving practice? Send them to their grandparent/auntie; tell them to pick up the favorite food. Someone says “let me know if there’s anything I can do”? Tell them you need a casserole or a lawn mowed.

        1 reply 4 proslijeđena tweeta 103 korisnika označavaju da im se sviđa
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      11. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        9) Get ok with the idea that your person has limited time. Don’t try to control everything. Make sure they have as much agency and autonomy as possible. Let them make every decision they can, even when you disagree, as long as it does no harm. Be flexible. Love the time you have.

        4 proslijeđena tweeta 119 korisnika označava da im se sviđa
        Prikaži ovu nit
      12. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        10) the goal with skilled nursing/hospital is that your person doesn’t *lose* ability/cognition, but expect that they may lose ground while in care. Their routine & environment is disrupted. If OT/PT is available — YES, you want it. Every time.

        3 proslijeđena tweeta 104 korisnika označavaju da im se sviđa
        Prikaži ovu nit
      13. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        11) last one: take care of you. Share the responsibilities. Schedule your own downtime. Put the oxygen mask on your own face before assisting someone else. Being responsible for another person is hard work; so is being cared for. It’s emotionally intensive labor for both of you.

        3 proslijeđena tweeta 137 korisnika označava da im se sviđa
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      14. CZEdwards is somewhat away from keyboard‏ @CZEdwards 7. sij
        • Prijavi Tweet

        Tomorrow I will do the opposite thread: how not to do the caregiving. (It mostly boils down to boundaries and saying NO and being proactive now before your objectively terrible person ends up in the ER, but there’s no reason you MUST be a caregiver for someone who hurt you.)

        6 replies 5 proslijeđenih tweetova 128 korisnika označava da im se sviđa
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