Congrats! Thank you for writing your experience and sharing. Helps understand the process better.
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Indeed that is the main idea: give you and others a full view of the process in terms of steps and time and effort. That is what I wished I had when we started
and why talking to others was so useful. Also why I feel I personally need to pay it forward by helping others 
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Amazing work! Such a good outcome for those in the US. Does it translate internationally?
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Sadly, no. But happily, the rest of the world is ahead of the US on ICD-11
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Thanks for all your hard work to make this possible
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It was truly a team effort, grateful for input from
@CDKL5USA clinicians,@curedravet,@TJBichell, and of course support from@Child_Neurology,@RareDiseases,@AmEpilepsySoc, and@EpilepsyFdn. - Još 2 druga odgovora
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Thank you so much for sharing. I wonder if this has ever come up in
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@TheGreenJohnny I got very excited about an ICD-10 code for#stxbp1 after hearing@TJBichell talk at Global Genes last fall. This is definitely of interest - we have much to do for#stxbp1! - Još 1 odgovor
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Čini se da učitavanje traje već neko vrijeme.
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