Cystic Fibrosis Foundationحساب تایید شده

@CF_Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis.

Headquarters in Bethesda, MD
در ۱۳۸۸ مرداد پیوسته است

توييت‌ها

@CF_Foundation را مسدود کردید

مطمئن اید که می‌خواهید این توییت‌ها را ببینید؟ دیدن توییت‌ها، @CF_Foundation را از مسدودشدگی در نمی‌آورد.

  1. ۱۸ دقیقه پیش

    "We have never let the life expectancy numbers define our thought processes when it came to decisions involving our family. But it scares me that we're not just chasing the numbers anymore, we are actually catching up to them."

    بازگرداندن
  2. ۱۹ ساعت پیش

    Have you started to have conversations with your care team about getting a transplant? Kyle Cole, an adult living with , shares the one thing he wishes he knew before his double-lung transplant.

    بازگرداندن
  3. اردیبهشت ۷

    Today, more than 70 hikers will walk 30 miles of the Appalachian Trail to help move us closer to a cure for at with ! Thank you for adding tomorrows for people with CF.

    بازگرداندن
  4. اردیبهشت ۶

    "Although affects so much of our bodies, from lungs to pancreas to reproductive processes, it does not control our brains, creativity and work ethic. For that, I am thankful every day."

    بازگرداندن
  5. اردیبهشت ۶

    Team CF is recruiting for the 2019 ! Register today to get a guaranteed entry bib for the full marathon or 10K, a pre-race pasta party, exclusive MCM gear, and more.

    بازگرداندن
  6. اردیبهشت ۵

    This year, hundreds of volunteers from the community will take our search for a cure to new heights at events across the country. ⛰️ Will you join them?

    بازگرداندن
  7. اردیبهشت ۵

    In case you missed it, , a television host and a parent to two children living with , spoke on about their family's journey with CF--from diagnosis, to their life today.

    بازگرداندن
  8. اردیبهشت ۴

    Germs can never be completely avoided, but there are steps you can take to help reduce the risk of getting or spread germs. Check out 8️⃣ tips to guard against germs in your every day life.

    بازگرداندن
  9. بازتوییت کرد
    اردیبهشت ۴

    Michigan showed up STRONG for the first CF Advocacy Day! So excited to be here in the mitten state with so many amazing advocates to talk with the legislature about and !

    بازگرداندن
  10. اردیبهشت ۴

    For years, dealt with symptoms that she thought were related to her . But because she was open about all her symptoms with other doctors she was seeing, she shares how she found the real cause of her issues.

    بازگرداندن
  11. اردیبهشت ۳

    Traveling this spring? Know your air travel rights when you or a loved one has , and what additional assistance is available to you. ✈️

    بازگرداندن
  12. اردیبهشت ۳

    Nontuberculous mycobacteria (NTM) can cause difficult-to-treat infections. Today, we’re pleased to share we have awarded up to $5.1M to to develop drugs to test potential treatments for infections caused by two types of NTM.

    بازگرداندن
  13. اردیبهشت ۲

    No one enjoys being in the hospital, but small acts of kindness can make a difference in the overall experience. See how Cole Favro's stay at turned around thanks to a 🍕 delivery.

    بازگرداندن
  14. اردیبهشت ۲

    By sharing your experiences and opinions, you can make a difference for the community as a member of Community Voice. Join more than 900 adults with CF and their family members today!

    بازگرداندن
  15. اردیبهشت ۲

    comes with a lot of unexpected challenges. , a mom to a child with CF, shares how her son's diagnosis has taught her and her husband to be flexible, and grow as parents.

    بازگرداندن
  16. اردیبهشت ۱

    Regular physical activity or exercise is important for everyone, but especially when you have . Learn how to develop a fitness plan that works for your needs.

    بازگرداندن
  17. اردیبهشت ۱

    Haven't registered for yet? It's not too late! Matthew Lail, an adult living with , shares 5️⃣ of his favorite things about participating in his local walk. 👟

    بازگرداندن
  18. فروردین ۳۱

    "I've told myself my whole life that I never wanted to let define me, and it hasn't. But, I can't deny that it has played a major role is shaping me into the woman I am today."

    بازگرداندن
  19. فروردین ۳۱

    A big thank you to all walkers in Virginia Beach who are lacing up for a cure for at today! We can't thank you enough for everything you do. 👟

    بازگرداندن
  20. فروردین ۳۰

    For many people, insurance hassles are as much a part of living with as nebulizers and vests. But you don't have to do it alone: Compass can help solve complex issues so you have time for other aspects of your life.

    بازگرداندن

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