Cystic Fibrosis FoundationOvjeren akaunt

@CF_Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis.

Headquarters in Bethesda, MD
cff.org
Vrijeme pridruživanja: srpanj 2009.
1.727 fotografija ili videozapisa Fotografije i videozapisi

Tweetovi

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  1. prije 1 sat

    Regular physical activity or exercise is important for everyone, but especially when you have . How to develop a fitness plan that works for you.

    2 proslijeđena tweeta 6 korisnika označava da im se sviđa
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  2. prije 20 sati

    "Is there an elegant way to tell people, 'Hi, I know I was at happy hour the other day and seemed totally fine and normal, but I've slowly been getting sicker and sicker and today I woke up running a fever and couldn't breathe?'"

    11 proslijeđenih tweetova 37 korisnika označava da im se sviđa
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  3. 4. velj

    Did you know that getting the flu may cause a worsening of symptoms and lead to a faster decline in lung function in people with ? Learn how to help reduce the risk of getting and spreading germs, like the flu.

    12 proslijeđenih tweetova 18 korisnika označava da im se sviđa
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  4. 3. velj

    This month on Breaking Through, chats with MaryBeth Hyland about how she started her own company and then help found Tomorrow’s Leaders, the Foundation’s young professionals program. Listen 🎧 now!

    3 proslijeđena tweeta 8 korisnika označava da im se sviđa
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  5. 3. velj

    Together, we have made remarkable progress in the fight against . But our work isn't done yet. You can help us continue to make great strides by walking with us. Sign up your team for today!

    5 proslijeđenih tweetova 23 korisnika označavaju da im se sviđa
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  6. 2. velj

    “3. Prioritize. I have a rule that I only put three things on my to-do list a day, since being too busy can surprisingly un-motivate you and cause you to shut down. Realistic prioritization is key.” -Jessika Biele, an adult with

    5 proslijeđenih tweetova 22 korisnika označavaju da im se sviđa
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  7. 2. velj

    Are you caring for a child living with ? Our tips for making sure they are getting the nutrients they need at all ages.

    7 proslijeđenih tweetova 9 korisnika označava da im se sviđa
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  8. 1. velj

    If you or a loved one has recently been diagnosed with , you may have many questions. We have resources that can help.

    1 reply 7 proslijeđenih tweetova 21 korisnik označava da mu se sviđa
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  9. 1. velj

    Janeil Whitworth, an adult living with , shares 4️⃣ tips that helped her find balance in her new role as a mom.

    2 proslijeđena tweeta 12 korisnika označava da im se sviđa
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  10. 31. sij

    Life with means dealing with complex logistics from making appointments to dealing with insurance. , an adult with CF, shares 4️⃣ things she's learned as she's taken these responsibilities over from her parents.

    7 proslijeđenih tweetova 14 korisnika označava da im se sviđa
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  11. 30. sij

    Exciting update: A lungs emoji will be available this fall, as a result of a proposal from .

    New in Emoji 13.0: Lungs
    Prikaži ovu nit
    1 reply 13 proslijeđenih tweetova 87 korisnika označava da im se sviđa
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  12. 30. sij

    We oppose new CMS guidance allowing state programs to apply for block grants or per capita caps and will educate stakeholders on how this will reduce access to quality, affordable care for people with , like .

    Today 27 patient groups expressed strong opposition to new guidance for states on block grants in that will harm patients with serious and chronic health conditions.
    21 proslijeđeni tweet 36 korisnika označava da im se sviđa
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  13. 30. sij

    Autumn Dawson Mathis, an adult living with , shares how realizing that CF wasn't her fault changed her perspective on life and let her release an extra emotional burden.

    3 proslijeđena tweeta 6 korisnika označava da im se sviđa
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  14. proslijedio/la je Tweet
    28. sij

    What a group! Thrilled to be a part of the Florida State Advocacy Day with this group of wonderful advocates! We’re here advocating for policies & programs that will help ppl w/ access & afford their care!

    5 proslijeđenih tweetova 30 korisnika označava da im se sviđa
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  15. 28. sij

    Hearing someone say, ‘it's not that bad’ or, ‘you need to sit still,’ can actually make anxiety about medical procedures worse. Talk to your care team to discuss how to more effectively manage or prevent your symptoms. ➡️

    1 proslijeđeni tweet 14 korisnika označava da im se sviđa
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  16. proslijedio/la je Tweet
    28. sij

    Excited for day at the Florida state capital today with !

    2 proslijeđena tweeta 20 korisnika označava da im se sviđa
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  17. 28. sij

    Wearing a mask is necessary to help reduce the risk of breathing in or spreading germs--especially in a health care setting. But, getting a toddler to wear one can be a challenge.

    6 proslijeđenih tweetova 24 korisnika označavaju da im se sviđa
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  18. proslijedio/la je Tweet
    27. sij

    This weekend's 35th Annual Tower Climb & Run was a HUGE success for the ! We couldn't have done it without all of our wonderful participants, teams and volunteers. Big thank you to everyone involved! 👍

    4 proslijeđena tweeta 13 korisnika označava da im se sviđa
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  19. 27. sij

    "There are no words to describe the feeling of taking deep breaths and having it travel through your entire body. My cough was quickly subsiding as I began coughing up white, clear, saliva-looking mucus."

    9 proslijeđenih tweetova 74 korisnika označavaju da im se sviđa
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  20. 26. sij

    Anxiety is one of the most common emotional issues that people face. If you think you or your child living with might have an anxiety disorder, don't wait to ask for help.

    1 reply 15 proslijeđenih tweetova 42 korisnika označavaju da im se sviđa
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