Cystic Fibrosis FoundationOvjeren akaunt

@CF_Foundation

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis.

Headquarters in Bethesda, MD
Vrijeme pridruživanja: srpanj 2009.

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  1. Regular physical activity or exercise is important for everyone, but especially when you have . How to develop a fitness plan that works for you.

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  2. "Is there an elegant way to tell people, 'Hi, I know I was at happy hour the other day and seemed totally fine and normal, but I've slowly been getting sicker and sicker and today I woke up running a fever and couldn't breathe?'"

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  3. Did you know that getting the flu may cause a worsening of symptoms and lead to a faster decline in lung function in people with ? Learn how to help reduce the risk of getting and spreading germs, like the flu.

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  4. This month on Breaking Through, chats with MaryBeth Hyland about how she started her own company and then help found Tomorrow’s Leaders, the Foundation’s young professionals program. Listen 🎧 now!

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  5. Together, we have made remarkable progress in the fight against . But our work isn't done yet. You can help us continue to make great strides by walking with us. Sign up your team for today!

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  6. “3. Prioritize. I have a rule that I only put three things on my to-do list a day, since being too busy can surprisingly un-motivate you and cause you to shut down. Realistic prioritization is key.” -Jessika Biele, an adult with

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  7. Are you caring for a child living with ? Our tips for making sure they are getting the nutrients they need at all ages.

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  8. If you or a loved one has recently been diagnosed with , you may have many questions. We have resources that can help.

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  9. Janeil Whitworth, an adult living with , shares 4️⃣ tips that helped her find balance in her new role as a mom.

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  10. Life with means dealing with complex logistics from making appointments to dealing with insurance. , an adult with CF, shares 4️⃣ things she's learned as she's taken these responsibilities over from her parents.

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  11. Exciting update: A lungs emoji will be available this fall, as a result of a proposal from .

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  12. We oppose new CMS guidance allowing state programs to apply for block grants or per capita caps and will educate stakeholders on how this will reduce access to quality, affordable care for people with , like .

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  13. Autumn Dawson Mathis, an adult living with , shares how realizing that CF wasn't her fault changed her perspective on life and let her release an extra emotional burden.

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  14. proslijedio/la je Tweet
    28. sij

    What a group! Thrilled to be a part of the Florida State Advocacy Day with this group of wonderful advocates! We’re here advocating for policies & programs that will help ppl w/ access & afford their care!

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  15. Hearing someone say, ‘it's not that bad’ or, ‘you need to sit still,’ can actually make anxiety about medical procedures worse. Talk to your care team to discuss how to more effectively manage or prevent your symptoms. ➡️

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  16. proslijedio/la je Tweet
    28. sij

    Excited for day at the Florida state capital today with !

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  17. Wearing a mask is necessary to help reduce the risk of breathing in or spreading germs--especially in a health care setting. But, getting a toddler to wear one can be a challenge.

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  18. proslijedio/la je Tweet
    27. sij

    This weekend's 35th Annual Tower Climb & Run was a HUGE success for the ! We couldn't have done it without all of our wonderful participants, teams and volunteers. Big thank you to everyone involved! 👍

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  19. "There are no words to describe the feeling of taking deep breaths and having it travel through your entire body. My cough was quickly subsiding as I began coughing up white, clear, saliva-looking mucus."

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  20. Anxiety is one of the most common emotional issues that people face. If you think you or your child living with might have an anxiety disorder, don't wait to ask for help.

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