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Prikvačeni tweet
Kalydeco = ivacaftor Orkambi = lumacaftor + ivacaftor Symkevi = tezacaftor + ivacaftor Trikafta = elexacaftor+tezacaftor+ ivacaftor
Prikaži ovu nitHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
If anyone has any help or advice to combat medicine induced headaches and neck pain, I’d be so grateful! Not sure if it’s Symkevi or IV side effects but I’m in a lot of pain
Painkillers and migraleve head patches aren’t touching itHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Clinical characteristics and genetic analysis of cystic fibrosis transmembrane conductance reseptor- related disease.https://www.physiciansweekly.com/clinical-characteristics-and-genetic-analysis-of-cystic-fibrosis-transmembrane-conductance-reseptor-related-disease/ …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Tributes paid to brave Johnstone schoolboy Ayden Cochrane as he makes ‘final journey’https://www.the-gazette.co.uk/news/18210074.tributes-paid-brave-johnstone-schoolboy-ayden-cochrane-makes-final-journey/ …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Anyone else never feel there hypos
#cysticfibrosis#CFRD#cf@CFAware@CfAdventurerspic.twitter.com/YnXQWGf17A
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
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cf/Aware proslijedio/la je Tweet
I’m honestly sad that eating disorders, disordered eating and unhealthy relationships with food isn’t something that is spoken about in CF more
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Any cystic fibrosis/transplant pals have any luck with long term travel insurance? I’m looking for long-term insurance that covers trips over 90 days that isn’t stupidly expensive? Thanks!
@CFAware#cysticfibrosisHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
@CFAware has anyone ever been told / diagnosed with ‘disorderly eating?’ ... so not an eating disorder but have a bad relationship with food and eating ?Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Let’s see if he can deliver on his promise. I hope so for the sake of this young girl as you can’t play roulette with peoples lives.
@CFAware@nhsCFwarriormum@cftrust@CFAwareness@CF_Foundation@cftrust@CFNewsToday@KnowCF@CysticLifehttps://twitter.com/emmagadie2009/status/1224639048175714304 …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
@CFAware#cysticfibrosis#lungfunctiontest I notoriously HATE doing lung function tests & have developed a fear of them. I know that there are reasons why this one had dropped but I still stupidly hoped I’d surprise myself and blow something better. Time to go and die in a hole.pic.twitter.com/vu97hJxlk7 – mjesto: Frimley Park HospitalHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
I mean, if you don't have a coughing attack, nearly pass out, and pee yourself, are you really doing the PFT right?
#CFSucksHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Really interesting and productive NICE scoping meeting today on trikafta. Great attendance from CF medical and patient community, inc
@cftrust, and a well run meeting that allowed different views to be aired and incorporated.Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
RT
@emily_jade19 CFer’s! I’m fairly new to taking creon, how do you know if you’ve taken enough / taken too much? Which side effect goes with which?#cysticfibrosisHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Sending my book to celebs and news outlets interested in CF. Harder to track people down than I realised!
#notcutoutforstalking#cysticfibrosis#cf#trikaftanow#orkambi#symkevi#NHS#patientexperience#chronicillnesspic.twitter.com/G43KZtkGgH
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
Where Will Vertex Pharmaceuticals Be in 10 Years? | Nasdaqhttps://www.fool.com/investing/2020/02/02/where-will-vertex-pharmaceuticals-be-in-10-years.aspx …
Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
*PLEASE SHARE* for
@karis91732091 I only have a lungfunction of 16%!
My only hope is #TRIKAFTA#TRIKAFTANOW I'm begging@VertexPharma please SAVE my life! I just want to be able to see my 3 children grow up
PLEASE
#CYSTICFIBROSIS#CF@CFAwareHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
RT
@Ickle_Balfie Anyone know who we contact within@LloydsPharmacy to get a sharp box collected and a new one dropped off?Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Are you caring for a child living with
#cysticfibrosis? Our tips for making sure they are getting the nutrients they need at all ages.https://on.cff.org/3b5nwW8Hvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je Tweet
Is it true that we’re not allowed to take Ibuprofen? I’ve always taken paracetamol for aches and pains anyway but why can’t we take Ibuprofen? (According to my mother CFer’s aren’t allowed to take it
) @CFAwareHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi -
cf/Aware proslijedio/la je TweetHvala. Twitter će to iskoristiti za poboljšanje vaše vremenske crte. PoništiPoništi
Čini se da učitavanje traje već neko vrijeme.
Twitter je možda preopterećen ili ima kratkotrajnih poteškoća u radu. Pokušajte ponovno ili potražite dodatne informacije u odjeljku Status Twittera.
wish me luck, last time I waited 12 hours