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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. Grumpy Old Doc‏ @GrumpyOldDoc Feb 17
      Replying to @C7RKY

      Well here is the positive light and SOME of the factshttp://www.independent.co.uk/voices/comment/ashya-king-this-story-isnt-quite-what-it-seems-9716486.html …

      1 reply 0 retweets 0 likes
    2. John Clarke‏ @C7RKY Feb 17
      Replying to @GrumpyOldDoc

      I think you and I read that piece with v different eyes, doc. I see as much spin as positive in there. My eye was drawn to this part: "Ashya's doctors insist they took a clinical (not financial) decision that it would NOT BE BETTER for him than conventional radiotherapy" >>

      1 reply 0 retweets 0 likes
    3. John Clarke‏ @C7RKY Feb 17
      Replying to @C7RKY @GrumpyOldDoc

      Which option is/isn't 'better' is an opinion. (And I know you appreciate the subtlety of that wording every bit as much as I do). But if both options are of overall benefit to the patient, then as an adult, I get to choose which one I go for - NOT the clinician. >>

      3 replies 0 retweets 0 likes
    4. Grumpy Old Doc‏ @GrumpyOldDoc Feb 17
      Replying to @C7RKY

      Parents chose a potentially better but unproven treatment over what was the "gold standard" therapy. They were not denied a proven magic bullet.http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(16)00102-9/fulltext …

      1 reply 0 retweets 0 likes
    5. John Clarke‏ @C7RKY Feb 17
      Replying to @GrumpyOldDoc

      Potentially better? Or would 'not be better' than? I never suggested there was any magic bullet. Just a denial of choice in an extremely draconian fashion.

      1 reply 0 retweets 0 likes
    6. Grumpy Old Doc‏ @GrumpyOldDoc Feb 17
      Replying to @C7RKY

      What's Draconian about saying the evidence base isn't robust yet, here is the recommended gold standard treatment with current best outcomes. Photon therapy wasn't recomnended treatment in guidelines either side of Atlantic and time delay is crucial

      1 reply 0 retweets 1 like
    7. John Clarke‏ @C7RKY Feb 20
      Replying to @GrumpyOldDoc

      Nothing draconian about expressing an opinion. Enforcing that opinion upon others through the use of a European arrest warrant and a man hunt for the parents seemed a tad draconian to me though.

      1 reply 0 retweets 0 likes
    8. Grumpy Old Doc‏ @GrumpyOldDoc Feb 20
      Replying to @C7RKY

      The arrest warrant was based on current obligatory child protection rules for healthcare professionals Child, being fed enterally, was removed from hospital by parents untrained in how to feed him = at risk of aspiration or starvation so had to be found = arrest warrant

      1 reply 0 retweets 0 likes
    9. John Clarke‏ @C7RKY Feb 20
      Replying to @GrumpyOldDoc

      Child protection rules we could probably debate for months. Regardless of good intent, they are a source of fear for many parents (myself included). I'm mindful of the fact that they only ran because the option to do it properly was removed. Would I have done the same? Perhaps..

      1 reply 0 retweets 0 likes
    10. Grumpy Old Doc‏ @GrumpyOldDoc Feb 20
      Replying to @C7RKY

      Even that's debated by Trust, they say they had already contacted photon site before parents withdrew him

      1 reply 0 retweets 0 likes
      John Clarke‏ @C7RKY Feb 20
      Replying to @GrumpyOldDoc

      Hmmm. Only a handful of people will know the real truth behind that, but personal experience has made me closely question statements issued by hospital trusts these days. Especially those who sense reputational damage may be an imminent risk.

      3:53 AM - 20 Feb 2018
      1 reply 0 retweets 0 likes
        1. Grumpy Old Doc‏ @GrumpyOldDoc Feb 20
          Replying to @C7RKY

          http://www.bbc.co.uk/mediacentre/latestnews/2015/ashya-king … For info

          0 replies 0 retweets 1 like
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