Well here is the positive light and SOME of the factshttp://www.independent.co.uk/voices/comment/ashya-king-this-story-isnt-quite-what-it-seems-9716486.html …
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Replying to @GrumpyOldDoc
I think you and I read that piece with v different eyes, doc. I see as much spin as positive in there. My eye was drawn to this part: "Ashya's doctors insist they took a clinical (not financial) decision that it would NOT BE BETTER for him than conventional radiotherapy" >>
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Replying to @C7RKY @GrumpyOldDoc
Which option is/isn't 'better' is an opinion. (And I know you appreciate the subtlety of that wording every bit as much as I do). But if both options are of overall benefit to the patient, then as an adult, I get to choose which one I go for - NOT the clinician. >>
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Replying to @C7RKY
Parents chose a potentially better but unproven treatment over what was the "gold standard" therapy. They were not denied a proven magic bullet.http://www.thelancet.com/journals/lanonc/article/PIIS1470-2045(16)00102-9/fulltext …
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Replying to @GrumpyOldDoc
Potentially better? Or would 'not be better' than? I never suggested there was any magic bullet. Just a denial of choice in an extremely draconian fashion.
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Replying to @C7RKY
What's Draconian about saying the evidence base isn't robust yet, here is the recommended gold standard treatment with current best outcomes. Photon therapy wasn't recomnended treatment in guidelines either side of Atlantic and time delay is crucial
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Replying to @GrumpyOldDoc
Nothing draconian about expressing an opinion. Enforcing that opinion upon others through the use of a European arrest warrant and a man hunt for the parents seemed a tad draconian to me though.
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Replying to @C7RKY
The arrest warrant was based on current obligatory child protection rules for healthcare professionals Child, being fed enterally, was removed from hospital by parents untrained in how to feed him = at risk of aspiration or starvation so had to be found = arrest warrant
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Replying to @GrumpyOldDoc
Child protection rules we could probably debate for months. Regardless of good intent, they are a source of fear for many parents (myself included). I'm mindful of the fact that they only ran because the option to do it properly was removed. Would I have done the same? Perhaps..
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Replying to @C7RKY
Even that's debated by Trust, they say they had already contacted photon site before parents withdrew him
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Hmmm. Only a handful of people will know the real truth behind that, but personal experience has made me closely question statements issued by hospital trusts these days. Especially those who sense reputational damage may be an imminent risk.
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