I was hoping that it could give me closure, honesty, correct medical records; potential fair equitable, future social healthcare. Why isn’t Candour real? I saw a post where an apology was received for other patient records +Datex, + ICO informed; that’s unexpectedly constructive.
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100% agree. Also where are all the other people like me? You’re supported by a multitude bereaved by apparent shortfalls in care. Where are the people like me? Alive, but damaged, w/ poor* care subsequently? *because of past medical oversights + ‘lost’ GP records impeding care.
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I've met a fair few along the way. But depending on the nature of the harm, I think many of them have their hands full just getting on with life. Also more likely to find a 'make the best of it' outlook where possible there, which you're unlikely to find after a death.
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Excellent point. If I'd had access to NICE Guidelines tests after Bupa* DVT diagnosis. Or made full recovery after pelvic surgery for DVT-cause a year later; there'd be no need to continue asking for help. (27/9/12 MRI* found no provoke-injury, DVT diagnosed 1/10/12 ultrasound*).
End of conversation
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I wish that I could retweet your comment twice! It’s so spot-on in identifying that damaging loss of trust, key to (professional) relationships.
Thanks. Twitter will use this to make your timeline better. UndoUndo
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This is the issue for me. I came to no actual harm, unlike others here, but the lies leave me with no trust, and anticipating reprisals.
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I'm in a similar boat. I'm not the one who's suffered any harm - it's been those around me who've paid the price. But the lies destroyed my trust just as much as theirs. Reprisals I'm mindful of, but so far it seems clinicians are more keen to avoid making errors when I'm around.
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"Reprisals I'm mindful of" You should be.
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Perhaps so. I knew what I was taking on though and made the conscious decision to do so anyway. I just wasn't prepared to allow what I'd found going on to continue, regardless of the personal consequences of stopping it. It crossed a line for me.
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Honesty is a huge deal. It’s unanticipated how hard it is to get honest records, information sharing from or between medical professionals. I have no doubt that poor data systems, coupled with numerous patients to remember, confused note taking, high staff turnover, plays a part.
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Some of the systems are appalling. Eg. not all GP practices use compatible software systems; can’t transfer data electronically above certain file sizes, are not allowed to use memory sticks, allegedly. Even prescriptions; use 3 keyword search max., results ordered by frequently.
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