I would ask everyone to read this thread. Informed consent and scientific evidence or lack of so very important in this world. oh and follow @C7RKYhttps://twitter.com/C7RKY/status/954704732844625920 …
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However we did know when "folk healing" did not work.
#Dani would have died aged 10 if it had not been for the transplant. she had brilliant care until Addenbrooke's, hard to believe how things can change from hospital to hospital.Thanks. Twitter will use this to make your timeline better. UndoUndo
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Then of course many years earlier I gave into the bullying of an obstetrician and
#Edward died. Sorry still after over 40 years cannot get my head round why I let that happen. And yes I allowed it despite knowing it was wrong. -
I'm so sorry Helga. But you mustn't blame yourself. We have to trust in that situation - we have no choice. Even when the voice in our head is screaming at us. We're as vulnerable as the person in the hospital bed in that moment.
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I think the blame lies equally in this instance between the "professional" and me. His obstanancy won. 4 weeks of stand off, I could have held out, I should have. The rest of the story much more scarry and I do apportion culpability to the hospital.
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Coulda, shoulda, woulda. You did the best you could at all times. Nothing short of that. Revisiting events and trying to work out what else you could've done is the norm, you know that. Do try and be kind to yourself - you deserve it. x
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thank you. Doubts always there and as always with the NHS no answers, and Edward was a long time ago, long before twitter. Dani much more recent and also will never be candour, truth or compassion - not sure I can do what
@willcpowell has done for so many years. -
I honestly don't know how
@willcpowell has done it. Don't think I have the stamina to do this for a quarter of a centur like him. I have nothing but admiration & gratitude for him, but we can't all do what he's done. Do what you can, but take care of yourself too. No doubts.. x -
I am doing a little writing - cathartic but also plumbing the depths, and not just about Dani and Edward. Thank you.
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Sounds like a bit of a mixed blessing? On balance, probably a good way of letting it all out. Nice one Helga. x
End of conversation
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