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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. Elise Holton‏ @MooskelTomTom Jan 27
      Replying to @MikeStone2_EoL @ann_poppy and

      It is true that people become experts of their own cases with detailed understanding before approaching PHSO but that does not excuse the very basic errors they are repeatedly making preventing anything moving forward - see written evidence PACAC PHSO scrutiny Elise Holton

      1 reply 3 retweets 3 likes
    2. Mike Stone‏ @MikeStone2_EoL Jan 27
      Replying to @MooskelTomTom @ann_poppy and

      Well - nothing should excuse 'very basic errors' within a body such as the PHSO: 'basic errors' are things which beginners might make, but not 'experts'.

      2 replies 1 retweet 2 likes
    3. Elise Holton‏ @MooskelTomTom Jan 27
      Replying to @MikeStone2_EoL @ann_poppy and

      file:///C:/Users/user/Desktop/written%20evidence.pdf

      1 reply 0 retweets 1 like
    4. Mike Stone‏ @MikeStone2_EoL Jan 27
      Replying to @MooskelTomTom @ann_poppy and

      That URL doesn't take me to a PDF.

      2 replies 0 retweets 0 likes
    5. Della Reynolds‏ @phsothefacts Jan 27
      Replying to @MikeStone2_EoL @MooskelTomTom and

      This will take you there. Very damning evidence against #PHSO - the same every year. https://www.parliament.uk/business/committees/committees-a-z/commons-select/public-administration-and-constitutional-affairs-committee/inquiries/parliament-2017/annual-scrutiny-session-17-19/publications/ …

      4 replies 5 retweets 7 likes
    6. Dr Umesh Prabhu‏ @DrUmeshPrabhu Jan 27
      Replying to @phsothefacts @MikeStone2_EoL and

      We must change such a #Culture and believe me, we will

      2 replies 2 retweets 3 likes
    7. Justice4Elsie‏ @ann_poppy Jan 28
      Replying to @Mindyourownyo @DrUmeshPrabhu and

      http://www.dailymail.co.uk/news/article-5320921/Family-claims-Howard-Lew-Lewis-killed-NHS.html …

      3 replies 7 retweets 7 likes
    8. John Clarke‏ @C7RKY Jan 28
      Replying to @ann_poppy @Mindyourownyo and

      "..this combination of drugs would only be appropriate for a patient 'in the terminal phase of a malignant disease'. But Ms Milazzo insisted last night that her father had not received a terminal diagnosis." > Well if this isn't just the perfect addition to this thread. Hmmm..

      3 replies 7 retweets 6 likes
    9. karen armstrong‏ @ashkarmstrong Jan 29
      Replying to @C7RKY @ann_poppy and

      Mixing midazolam with other drug's lethal had they deep sedated this poor man wonder if he had fits hope his family get all the medical records that they don't go missing falsify wonder if toxoligy report mortality report safeguarding so sad poor man

      2 replies 6 retweets 8 likes
      John Clarke‏ @C7RKY Jan 29
      Replying to @ashkarmstrong @ann_poppy and

      It's a name that's etched into my mind now - I have Wayne to thank for that. It's the first drug I think to ask about now, next to morphone for eolc. I just don't understand this side of it well enough. Haven't had to study drugs outside of MMR jabs in my journey. So not my forte

      4:28 PM - 29 Jan 2018
      • 1 Like
      • Infamous Ellie #HUMAN
      5 replies 0 retweets 1 like
        1. New conversation
        2. John Clarke‏ @C7RKY Jan 30
          Replying to @billdossett @ashkarmstrong and

          I had a happy, walking, talking little boy. We took him for his MMR jab. Fever & crying started that night. He didn't stop screaming again for 3 months, whilst banging his head on walls/floor, arching his back in agony while he screamed & going through 20+ toxic nappies per day.

          5 replies 3 retweets 2 likes
        3. John Clarke‏ @C7RKY Jan 30
          Replying to @C7RKY @billdossett and

          Eventually, he 'emerged' severely autistic, unable to walk, talk, look you in the eye, or do anything he was able to do beforehand. The medical world says there's no link. After a little research, I conclude the medical world is full of shit. Just a personal opinion, of course :)

          3 replies 3 retweets 4 likes
        4. Andrew Flynn‏ @MathewFsDad Jan 30
          Replying to @C7RKY @tinavikki85 and

          week before MMR walked up to my dad and said hello grandad (approx 20 months old) then had the MMR and growls for 3 years and no talking

          2 replies 3 retweets 4 likes
        5. John Clarke‏ @C7RKY Jan 30
          Replying to @MathewFsDad @tinavikki85 and

          Oh.. Andrew. It doesn't matter how many people tell me about their experience, (and there have been LOTS) it still gives me a lump in my throat every time. I'm so sorry. How's he doing now?

          1 reply 2 retweets 2 likes
        6. Andrew Flynn‏ @MathewFsDad Jan 30
          Replying to @C7RKY @tinavikki85 and

          I'm not allowed to mention him online at the moment thanks to some very nasty people... But I can if you wish do as I have with others and help you to get to know him and him you sir

          1 reply 1 retweet 2 likes
        7. John Clarke‏ @C7RKY Jan 30
          Replying to @MathewFsDad @tinavikki85 and

          You're not? Oh dear. That sounds troubling. Not sure I understand the help you're referring to here? But perhaps that's because don't feel able to say.

          1 reply 0 retweets 2 likes
        8. Andrew Flynn‏ @MathewFsDad Jan 30
          Replying to @C7RKY @tinavikki85 and

          I spent my sons life researching and working with many people on the spectrum, and hired by the county council to work in schools. So with personal history I can help parents to better understand and help form strategies that work, and have done successfully sir. So I offer help

          0 replies 1 retweet 3 likes
        9. End of conversation
        1. New conversation
        2. Mike Stone‏ @MikeStone2_EoL Jan 30
          Replying to @C7RKY @ashkarmstrong and

          As I've said many times: if HCPs want to give you a drug, they should be obtaining Informed Consent - which REQUIRES that they explain the consequences/purpose of the drug's administration to you. That is where the problem 'rests' - HCPs NOT DOING that.

          1 reply 4 retweets 4 likes
        3. John Clarke‏ @C7RKY Jan 30
          Replying to @MikeStone2_EoL @ashkarmstrong and

          Absolutely Mike. Somebody needs to arrive armed with empirical studies and source data these days if they want my consent for anything. Horse has long since disappeared over the horizon though sadly, even though I've bolted and padlocked the gate now. Never again.

          1 reply 1 retweet 2 likes
        4. Mike Stone‏ @MikeStone2_EoL Jan 30
          Replying to @C7RKY @ashkarmstrong and

          Then you wouldn't be very keen on 'ReSPECT' which is being 'rolled out' at the moment.

          1 reply 0 retweets 4 likes
        5. John Clarke‏ @C7RKY Jan 30
          Replying to @MikeStone2_EoL @ashkarmstrong and

          No, I'm not keen at all from what you've showed me. You can probably understand now why I took such an interest in your tweets when I first noticed you on twitter. We definitely share a passion for informed consent. I need to review more of your work when I have time.

          2 replies 3 retweets 4 likes
        6. Mike Stone‏ @MikeStone2_EoL Feb 1
          Replying to @C7RKY @ashkarmstrong and

          What 'do I seem'? I am what I appear to be - someone who is annoyed by 'End-of-life-at-home mindsets/behaviours' and also by deeply 'self-serving' interpretations of the MCA by the professionals. Although to check that, you need to read BMJ and Dignity in Care [not Twitter].

          3 replies 0 retweets 1 like
        7. John Clarke‏ @C7RKY Feb 1
          Replying to @MikeStone2_EoL @ashkarmstrong and

          Yes, I just use Twitter as a means of finding links to your other stuff. We all start out annoyed by something. We'd all be finding far better things to do with our time that sit on Twitter talking about this stuff all day long if we hadn't been motivated by some strong force.

          1 reply 2 retweets 2 likes
        8. Mike Stone‏ @MikeStone2_EoL Feb 1
          Replying to @C7RKY @ashkarmstrong and

          Ah - I 'love that one'. Many of the professionals say 'this guy isn't impartial - he's got an axe to grind' and 'discount us': but we wouldn't be involved if we hadn't been very upset by something! @KateAllatt @katemasters67 @KitzingerCelia

          3 replies 4 retweets 4 likes
        9. John Clarke‏ @C7RKY Feb 1
          Replying to @MikeStone2_EoL @ashkarmstrong and

          The only thing which could possibly lead you to be knowledgeable enough to have a meaningful opinion, is the very same thing which disqualifies that opinion from being considered. You couldn't make it up. I bet @Penbat1 will have an appropriate wiki link for this somewhere...

          1 reply 3 retweets 5 likes
        10. 3 more replies
        1. New conversation
        2. Joanne Fraser‏ @JFr4ser Jan 29
          Replying to @C7RKY @ashkarmstrong and

          He does have a terminal disease - dementia

          4 replies 0 retweets 0 likes
        3. John Clarke‏ @C7RKY Jan 29
          Replying to @JFr4ser @ashkarmstrong and

          Then I guess this will end up being another case you and I will pore over if the family decide to go forward in some way? Let's see what comes next...

          1 reply 0 retweets 1 like
        4. Joanne Fraser‏ @JFr4ser Jan 29
          Replying to @C7RKY @ashkarmstrong and

          Police are investigating. Reporting is off if there’s no terminal disease but then dementia is mentioned...

          1 reply 1 retweet 1 like
        5. John Clarke‏ @C7RKY Jan 29
          Replying to @JFr4ser @ashkarmstrong and

          I think you're trying to draw me into a debate I'm ill equipped for tbh. I've been a bit of a passenger on this thread subject, picking up what I can along the way. I never considered dementia an imminent threat to life though, as a casual observation.

          3 replies 2 retweets 1 like
        6. Joanne Fraser‏ @JFr4ser Jan 29
          Replying to @C7RKY @ashkarmstrong and

          It’s still a terminal diagnosis. Average 8-12yrs after diagnosis. Some will live longer with increasing disability, some less. There’s no known treatment or cure

          2 replies 0 retweets 2 likes
        7. Lynn Laidlaw‏ @lynn_laidlaw Jan 29
          Replying to @JFr4ser @C7RKY and

          Life is a terminal diagnosis! Think you are being a bit disingenuous here. I don't think the Daily Mail is a reliable source of information though.

          2 replies 1 retweet 1 like
        8. Mike Stone‏ @MikeStone2_EoL Jan 30
          Replying to @lynn_laidlaw @JFr4ser and

          The Daily Mail seemed to mix 'part of the truth' with 'hysterical reaction' in some of its end-of-life stories, which I read when it was campaigning against the Liverpool Care Pathway. So more 'only partial' as opposed to 'unreliable' re DM and 'information' I think.

          2 replies 0 retweets 1 like
        9. 4 more replies

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