It is true that people become experts of their own cases with detailed understanding before approaching PHSO but that does not excuse the very basic errors they are repeatedly making preventing anything moving forward - see written evidence PACAC PHSO scrutiny Elise Holton
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I had a happy, walking, talking little boy. We took him for his MMR jab. Fever & crying started that night. He didn't stop screaming again for 3 months, whilst banging his head on walls/floor, arching his back in agony while he screamed & going through 20+ toxic nappies per day.
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Eventually, he 'emerged' severely autistic, unable to walk, talk, look you in the eye, or do anything he was able to do beforehand. The medical world says there's no link. After a little research, I conclude the medical world is full of shit. Just a personal opinion, of course :)
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week before MMR walked up to my dad and said hello grandad (approx 20 months old) then had the MMR and growls for 3 years and no talking
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Oh.. Andrew. It doesn't matter how many people tell me about their experience, (and there have been LOTS) it still gives me a lump in my throat every time. I'm so sorry. How's he doing now?
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I'm not allowed to mention him online at the moment thanks to some very nasty people... But I can if you wish do as I have with others and help you to get to know him and him you sir
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You're not? Oh dear. That sounds troubling. Not sure I understand the help you're referring to here? But perhaps that's because don't feel able to say.
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I spent my sons life researching and working with many people on the spectrum, and hired by the county council to work in schools. So with personal history I can help parents to better understand and help form strategies that work, and have done successfully sir. So I offer help
End of conversation
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As I've said many times: if HCPs want to give you a drug, they should be obtaining Informed Consent - which REQUIRES that they explain the consequences/purpose of the drug's administration to you. That is where the problem 'rests' - HCPs NOT DOING that.
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Absolutely Mike. Somebody needs to arrive armed with empirical studies and source data these days if they want my consent for anything. Horse has long since disappeared over the horizon though sadly, even though I've bolted and padlocked the gate now. Never again.
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Then you wouldn't be very keen on 'ReSPECT' which is being 'rolled out' at the moment.
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No, I'm not keen at all from what you've showed me. You can probably understand now why I took such an interest in your tweets when I first noticed you on twitter. We definitely share a passion for informed consent. I need to review more of your work when I have time.
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What 'do I seem'? I am what I appear to be - someone who is annoyed by 'End-of-life-at-home mindsets/behaviours' and also by deeply 'self-serving' interpretations of the MCA by the professionals. Although to check that, you need to read BMJ and Dignity in Care [not Twitter].
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Yes, I just use Twitter as a means of finding links to your other stuff. We all start out annoyed by something. We'd all be finding far better things to do with our time that sit on Twitter talking about this stuff all day long if we hadn't been motivated by some strong force.
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Ah - I 'love that one'. Many of the professionals say 'this guy isn't impartial - he's got an axe to grind' and 'discount us': but we wouldn't be involved if we hadn't been very upset by something!
@KateAllatt@katemasters67@KitzingerCelia -
The only thing which could possibly lead you to be knowledgeable enough to have a meaningful opinion, is the very same thing which disqualifies that opinion from being considered. You couldn't make it up. I bet
@Penbat1 will have an appropriate wiki link for this somewhere... - 3 more replies
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He does have a terminal disease - dementia
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Then I guess this will end up being another case you and I will pore over if the family decide to go forward in some way? Let's see what comes next...
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Police are investigating. Reporting is off if there’s no terminal disease but then dementia is mentioned...
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I think you're trying to draw me into a debate I'm ill equipped for tbh. I've been a bit of a passenger on this thread subject, picking up what I can along the way. I never considered dementia an imminent threat to life though, as a casual observation.
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It’s still a terminal diagnosis. Average 8-12yrs after diagnosis. Some will live longer with increasing disability, some less. There’s no known treatment or cure
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Life is a terminal diagnosis! Think you are being a bit disingenuous here. I don't think the Daily Mail is a reliable source of information though.
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The Daily Mail seemed to mix 'part of the truth' with 'hysterical reaction' in some of its end-of-life stories, which I read when it was campaigning against the Liverpool Care Pathway. So more 'only partial' as opposed to 'unreliable' re DM and 'information' I think.
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