In just 24 hours, @Trisha_the_doc has managed to get far more people to watch this short video than I managed in about 3 years of trying. So grateful...https://twitter.com/Trisha_the_doc/status/957187947081682944 …
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It's a work in progress! Interestingly research increasingly won't get funded without Patient Insight/ engagement. Need to remind myself it's baby steps but worthwhile.
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Well there's a whole army of patients out here trying to get their voices heard, so you'll not be short of support. I used to play rugby back in the day - you make a hole in the line, we'll push you through it. :)
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I like that analogy, thank you. I really miss my job but this compensates for it. Am thankful that my disease is under control and now have fantastic Consultant who listens and we work together.
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