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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

Tweets

John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. John Clarke‏ @C7RKY Jan 28

      John Clarke Retweeted Trisha Elliott

      In just 24 hours, @Trisha_the_doc has managed to get far more people to watch this short video than I managed in about 3 years of trying. So grateful...https://twitter.com/Trisha_the_doc/status/957187947081682944 …

      John Clarke added,

      Trisha Elliott @Trisha_the_doc
      A lot of passionate and upsetting debate just now on Twitter. Thank you to @C7RKY for signposting to this talk on medical errors and transparency. Reminds me of @MartinBromiley & @JamesTitcombe’s stories. Let’s move forward together. https://www.youtube.com/watch?v=qmaY9DEzBzI&sns=tw …
      5 replies 16 retweets 27 likes
    2. Trisha Elliott‏ @Trisha_the_doc Jan 28
      Replying to @C7RKY

      It’s one of the best things I’ve seen recently. I’m grateful to you for pointing me towards it. If makes so much sense to work with bereaved families to improve future care. I’m glad others have found it helpful too.

      1 reply 1 retweet 4 likes
    3. John Clarke‏ @C7RKY Jan 28
      Replying to @Trisha_the_doc

      I'm sure opinions will vary, but I think many would welcome the chance to work honestly with trusts/clinicians to understand what happened and help solve the problems. It's a variation on a theme: Not so much trust me I'm a doctor, as trust me, I'm a relative!

      2 replies 1 retweet 3 likes
    4. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
      Replying to @C7RKY @Trisha_the_doc

      Becoming a patient myself was eye opening. Am ashamed to say that until then I thought I understood what it was like because I was a nurse. Joint working definitely the way forward.

      1 reply 4 retweets 8 likes
    5. John Clarke‏ @C7RKY Jan 28
      Replying to @lynn_laidlaw @Trisha_the_doc

      I'd kind of got used to the patient & supportive relative roles. Didn't know any better. It was the complainant role that was the eye-opening one for me. WHOLE new world, right there! A place where candour & joint working don't exactly thrive currently. Be nice to see that change

      1 reply 0 retweets 2 likes
    6. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
      Replying to @C7RKY @Trisha_the_doc

      I had a 4 yr diagnostic odyssey which arguably cost me my job and driving licence. I had to officially complain about my care but thankfully it had a good outcome. I realise that many aren't so lucky.

      1 reply 0 retweets 2 likes
      John Clarke‏ @C7RKY Jan 28
      Replying to @lynn_laidlaw @Trisha_the_doc

      I'm sorry to hear that. Can't be easy to deal with. I think it helps to have clinical awareness from the outset in securing a good outcome. Most people can barely function after something's gone wrong, let alone grasp what's going on around them. They shouldn't have to, of course

      4:03 PM - 28 Jan 2018
      • 1 Like
      • Lynn Laidlaw
      1 reply 0 retweets 1 like
        1. New conversation
        2. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
          Replying to @C7RKY @Trisha_the_doc

          That's why I volunteer, if someone like me with clinical knowledge and good resources found getting a diagnosis hard what chance does anyone have! Am in awe of what people like yourself overcome, I had it easy in comparison.

          1 reply 1 retweet 1 like
        3. John Clarke‏ @C7RKY Jan 28
          Replying to @lynn_laidlaw @Trisha_the_doc

          That's very kind of you to say so, but in truth, I've overcome nothing. For all my efforts. I set out with 2 goals and I've achieved neither - yet. Good for you volunteering! What is it you do? Hope you're still able to put your clinical knowledge to use. So valuable.

          1 reply 0 retweets 2 likes
        4. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
          Replying to @C7RKY @Trisha_the_doc

          I volunteer for Vasculitis UK mainly on the helpline, helpling patients get a diagnosis and treatment. Also very involved in Patient Insight in research, go to lots of meetings etc to represent patients view. Clinical knowledge has proved very helpful.

          1 reply 1 retweet 1 like
        5. John Clarke‏ @C7RKY Jan 28
          Replying to @lynn_laidlaw @Trisha_the_doc

          Nice one. I know it's not quite plan A, but I'm glad you've found a good home for your skills. The 'voice of the patient' rarely makes much of a dent, to be frank. Knowledgeable patients included. But patients with clinical knowledge? Yeah.. that's not so easy to ignore. :)

          1 reply 0 retweets 2 likes
        6. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
          Replying to @C7RKY @Trisha_the_doc

          It's a work in progress! Interestingly research increasingly won't get funded without Patient Insight/ engagement. Need to remind myself it's baby steps but worthwhile.

          1 reply 0 retweets 1 like
        7. John Clarke‏ @C7RKY Jan 28
          Replying to @lynn_laidlaw @Trisha_the_doc

          Well there's a whole army of patients out here trying to get their voices heard, so you'll not be short of support. I used to play rugby back in the day - you make a hole in the line, we'll push you through it. :)

          1 reply 0 retweets 2 likes
        8. Lynn Laidlaw‏ @lynn_laidlaw Jan 28
          Replying to @C7RKY @Trisha_the_doc

          I like that analogy, thank you. I really miss my job but this compensates for it. Am thankful that my disease is under control and now have fantastic Consultant who listens and we work together.

          0 replies 0 retweets 2 likes
        9. End of conversation

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