It’s one of the best things I’ve seen recently. I’m grateful to you for pointing me towards it. If makes so much sense to work with bereaved families to improve future care. I’m glad others have found it helpful too.
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I'm sure opinions will vary, but I think many would welcome the chance to work honestly with trusts/clinicians to understand what happened and help solve the problems. It's a variation on a theme: Not so much trust me I'm a doctor, as trust me, I'm a relative!
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Becoming a patient myself was eye opening. Am ashamed to say that until then I thought I understood what it was like because I was a nurse. Joint working definitely the way forward.
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I'd kind of got used to the patient & supportive relative roles. Didn't know any better. It was the complainant role that was the eye-opening one for me. WHOLE new world, right there! A place where candour & joint working don't exactly thrive currently. Be nice to see that change
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I had a 4 yr diagnostic odyssey which arguably cost me my job and driving licence. I had to officially complain about my care but thankfully it had a good outcome. I realise that many aren't so lucky.
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I'm sorry to hear that. Can't be easy to deal with. I think it helps to have clinical awareness from the outset in securing a good outcome. Most people can barely function after something's gone wrong, let alone grasp what's going on around them. They shouldn't have to, of course
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That's why I volunteer, if someone like me with clinical knowledge and good resources found getting a diagnosis hard what chance does anyone have! Am in awe of what people like yourself overcome, I had it easy in comparison.
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That's very kind of you to say so, but in truth, I've overcome nothing. For all my efforts. I set out with 2 goals and I've achieved neither - yet. Good for you volunteering! What is it you do? Hope you're still able to put your clinical knowledge to use. So valuable.
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*The local hospital ignored her & denied her son dignity* For me,my Mum. When I listened to this I sobbed,because that is the feeling that is seared onto my soul.For some,Mum simply wasn't worth the truth. Now just go away,& live with that for eternity.The last decade of my life.
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Oh no! Sorry Deb - wouldn't want you upset. It is such a powerful message that it's hard not to relate to it though, when you've been on the receiving end of what wrong looks like. And no, that feeling isn't one that's easily forgotten in a hurry. Unsurprisingly. x
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You definitely have not upset me! it just summed up so much. Memories that never leave. Trying to explain to all, that it was always about my Mum. x
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Relieved to know. :) Starts out very simple really, doesn't it. And from our point of view, that doesn't change. Everything else just gets complicated around it to blur the issue.
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that’s reach! And
@Trisha_the_doc is a class act!



both of you! -
It’s an important topic. Glad people have picked up on it. Thank you for your kindness & support too :-)
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Thank you for sharing this, it should be compulsory watching. Devastating enough to lose a loved one to avoidable error, but the opportunity to ensure improved future safety being lost feels unforgivable.
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I’m not sure about the second point (apology). But yes to honesty, and yes to constructive changes to prevent it happening again, if possible/realistic, appropriate. Apologies are helpful if genuine, freely given, combined with honesty, continued good professional relationship.
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