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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @kateheydonorg @katemasters67 @C7RKY

      I can understand why you are 'campaigning' - it is a bit peculiar (it is usually 'a bad experience' that gets people like Kate, you and me 'involved'' - then, we get 'you are too personally-involved to be objective' thrown at us, don't we?).

      2 replies 2 retweets 2 likes
    2. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      Yes, I always thought it was a bit odd too. They seem to want 2 types of people involved. 1. Clinicians 2. Experts by experience (excluding those with actual experience, because it's too personal for them to be objective) So... clinicians then, mostly?

      2 replies 1 retweet 2 likes
    3. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @C7RKY @kateheydonorg @katemasters67

      1/2 I think 'experts by experience' DO HAVE 'personal experience', as I understand it. The big problem is this: the professionals want us 'service users' to describe our experiences, then they want to go away and [the professionals on their own] think about our input, while THEY

      1 reply 1 retweet 2 likes
    4. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @MikeStone2_EoL @C7RKY and

      2/2 create their own 'behaviours/protocols'guidance'. We 'service users' need to be sitting INSIDE the groups which design the actual protocols/guidance to be used by the professionals http://www.bmj.com/content/350/bmj.h1846/rr … Not sure how we do that - or where we get users who understand law, etc

      1 reply 2 retweets 2 likes
    5. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      My point was slightly tongue in cheek, but you're right - the end result always appears to be clinician led and it can feel as if lay evidence has been given a lower 'classification' in arriving at the overall conclusions sometimes.

      2 replies 2 retweets 1 like
    6. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @C7RKY @kateheydonorg @katemasters67

      Can't help feeling that we might be 'mingling' court rulings and day-to-day behaviour now: but there are huge issues with 'investigators' only believing what the clinicians wrote down (I've had that 'attitude' from a PHSO investigator, myself).

      1 reply 1 retweet 2 likes
    7. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      Yes, I borrowed the phrasing to make the point. Like you, I've had similar with PHSO, despite investigator being a nice chap. They just defer to whatever the trust tells them. Failed to use powers to seize original records in our case, yet determined no evidence of amendment?!

      2 replies 2 retweets 1 like
    8. Mike Stone‏ @MikeStone2_EoL Jan 20
      Replying to @C7RKY @kateheydonorg @katemasters67

      PHSO investigator told me 'we don't know what was discussed at that meeting, because the PCT did not keep a record'. I sent to PHSO 'well - I was at that meeting, why didn't you ask me what was discussed?'. PHSO promptly gave me a different 'investigator'.

      2 replies 2 retweets 1 like
    9. John Clarke‏ @C7RKY Jan 20
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      I'm going to guess (to borrow another common phrase) that the new investigator didn't make any difference to the overall outcome? I sent PHSO the relevant contemporaneous notes - why did I bother? I focused on police once I grasped the scale of PHSO issues from @phsothefacts.

      2 replies 3 retweets 1 like
    10. Della Reynolds‏ @phsothefacts Jan 20
      Replying to @C7RKY @MikeStone2_EoL and

      Did the police deal with your complaint @C7RKY

      2 replies 1 retweet 1 like
      John Clarke‏ @C7RKY Jan 20
      Replying to @phsothefacts @MikeStone2_EoL and

      That's more than a tweet's worth of response, I'm afraid Della. VERY long story short; they're still giving me the runaround, despite having an MP & his QC friend review evidence & write to Ch Constable. That provoked a joke of an investigation, which I'm about to complain about.

      6:41 AM - 20 Jan 2018
      2 replies 0 retweets 0 likes
        1. New conversation
        2. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @C7RKY @phsothefacts and

          1/n My PCT's investigation of the fiasco after my mum's death provided no answers to the actual questions, answered several questions which were not questions in the first place, and told me that my mum had died some days after she had been cremated, among other things. But the

          2 replies 1 retweet 1 like
        3. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @MikeStone2_EoL @C7RKY and

          2/n most annoying aspect of that investigation, is that a few weeks after my mum's death, nobody had said 'why did this happen' and I sent some questions to the district nurses. The DNs passed my questions to the PCT who sent me a letter informing me that I had lodged a

          2 replies 0 retweets 2 likes
        4. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @MikeStone2_EoL @C7RKY and

          3/n 'formal complaint' (which I hadn't - I had asked the nurses if they would answer some questions for me, in response to an unsolicited phone call from the nurses asking if they could call on me 'for a chat') and telling me the name of a PCT person who would perform the

          1 reply 1 retweet 1 like
        5. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @MikeStone2_EoL @C7RKY and

          4/n investigation. This PCT person, did not take the elementary step of asking me to tell her, what I wanted the PCT to investigate. Instead, she assumed that the questions I had put to the nurses, were the questions which an investigation needed to answer: they were not, I had

          2 replies 1 retweet 2 likes
        6. John Clarke‏ @C7RKY Jan 22
          Replying to @MikeStone2_EoL @phsothefacts and

          John Clarke Retweeted John Clarke

          How dreadful, but also how very interesting. NHS like to handle complaints of their own creation, it seems? As opposed to the complaints we actually make.https://twitter.com/c7rky/status/949004734144372736 …

          John Clarke added,

          John Clarke @C7RKY
          Replying to @C7RKY @katemasters67 and 21 others
          2/2 16/7 1st email to trust 19/7 Suggested questions drafted by trust, selectively assumed from my emails 19/7 I reject draft & explicitly say complaint is pending (see email excerpt below) 20/7 Rejection ignored, draft restated 25/7 Ghost complaint opened, closed & rejected ??? pic.twitter.com/R7fjeAOhu4
          1 reply 0 retweets 1 like
        7. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @C7RKY @phsothefacts and

          1/n You want my opinion about that PCT woman - it was that she wasn't a very competent investigator, and the complexity of why things happened as they did after my mum's death was simply 'beyond her ability'. When I made my displeasure with her report clear, the PCT invited me

          1 reply 1 retweet 1 like
        8. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @MikeStone2_EoL @C7RKY and

          2/n to a meeting. I asked a simple question at that meeting, at one point (after my mum died, I had got 999 paramedics, police, and two district nurses in my home [coroner's officer turned up later] - as a collective 'headless chickens' seemed to fit) I asked 'if after a death

          1 reply 0 retweets 1 like
        9. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @MikeStone2_EoL @C7RKY and

          3/n there are paramedics, district nurses and police all present - what are the protocols governing their interactions?' and everyone at the meeting, from the CEO downwards, 'just gave me blank looks'. Mind you - it was from that point on, that the PCT really annoyed me.

          1 reply 1 retweet 1 like
        10. 13 more replies
        1. New conversation
        2. Kate Heydon‏ @kateheydonorg Jan 20
          Replying to @C7RKY @phsothefacts and

          You’re lucky to have supportive friends. 2013 pre-op I was told by a barrister friend that I had a case for CUH failure to notice/treat obvious pelvic mass. But I thought that simply asking kindly for corrections in care, honesty, that fair, equitable care would be forthcoming.

          1 reply 1 retweet 1 like
        3. Kate Masters‏ @katemasters67 Jan 20
          Replying to @kateheydonorg @C7RKY and

          Even winning a landmark court ruling (that did not interrogate care but was to secure rights to know about DNACPR) wasn’t enough. This statement from them also supports the ‘She was dying anyway’ stance we had throughout the case... https://www.cuh.nhs.uk/news/communications/cuh-statement-court-appeal-decision-respect-janet-tracey-case …

          1 reply 2 retweets 1 like
        4. Kate Heydon‏ @kateheydonorg Jan 20
          Replying to @katemasters67 @C7RKY and

          I met Keith McNeil, CEO. Maybe your Decision was part of the impetus for useful non-blame open-learning workshop* CUH did around that time? Your decision may have contributed to some positive change maybe? *(I was the only still-physically-damaged (2012) person in attendance).

          2 replies 0 retweets 0 likes
        5. Kate Masters‏ @katemasters67 Jan 20
          Replying to @kateheydonorg @C7RKY and

          if it was, we weren’t told. All we got was inexplicable answers to the questions we asked about care and a lot of negativity. Things have changed a bit I feel, New CEO, I’ve been invited to see what they’ve changed-I just can’t go back there. Unresolved complaint and PTSD.

          4 replies 3 retweets 4 likes
        6. Kate Masters‏ @katemasters67 Jan 20
          Replying to @katemasters67 @kateheydonorg and

          I progressed my complaint for a further 18 months after the end of the case and it was clear they were never going to answer the questions, so I closed it unresolved.

          3 replies 5 retweets 3 likes
        7. Kate Masters‏ @katemasters67 Jan 20
          Replying to @katemasters67 @kateheydonorg and

          I’m pleased to hear about the open learning workshop. It sounds positive.

          1 reply 1 retweet 1 like
        8. Kate Heydon‏ @kateheydonorg Jan 20
          Replying to @katemasters67 @C7RKY and

          It was pretty awesome. The best part was that there was absolutely no blame, no victim-blaming, no criticism of staff.. So everyone could focus on opportunities for constructive learning. Most people there were very emotionally traumatised; I was the only one physically damaged.

          1 reply 0 retweets 1 like
        9. John Clarke‏ @C7RKY Jan 20
          Replying to @kateheydonorg @katemasters67 and

          That's all fine if you're dealing with the truth in the first place. Where that remains hidden, blame still exists, imho. Learning is impossible in such an environment. The only thing I've regarded as 'awesome' about the medical world so far, has been its capacity for corruption.

          0 replies 4 retweets 4 likes
        10. End of conversation

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