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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      Yes, I always thought it was a bit odd too. They seem to want 2 types of people involved. 1. Clinicians 2. Experts by experience (excluding those with actual experience, because it's too personal for them to be objective) So... clinicians then, mostly?

      2 replies 1 retweet 2 likes
    2. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @C7RKY @kateheydonorg @katemasters67

      1/2 I think 'experts by experience' DO HAVE 'personal experience', as I understand it. The big problem is this: the professionals want us 'service users' to describe our experiences, then they want to go away and [the professionals on their own] think about our input, while THEY

      1 reply 1 retweet 2 likes
    3. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @MikeStone2_EoL @C7RKY and

      2/2 create their own 'behaviours/protocols'guidance'. We 'service users' need to be sitting INSIDE the groups which design the actual protocols/guidance to be used by the professionals http://www.bmj.com/content/350/bmj.h1846/rr … Not sure how we do that - or where we get users who understand law, etc

      1 reply 2 retweets 2 likes
    4. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      My point was slightly tongue in cheek, but you're right - the end result always appears to be clinician led and it can feel as if lay evidence has been given a lower 'classification' in arriving at the overall conclusions sometimes.

      2 replies 2 retweets 1 like
    5. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @C7RKY @kateheydonorg @katemasters67

      Can't help feeling that we might be 'mingling' court rulings and day-to-day behaviour now: but there are huge issues with 'investigators' only believing what the clinicians wrote down (I've had that 'attitude' from a PHSO investigator, myself).

      1 reply 1 retweet 2 likes
    6. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      Yes, I borrowed the phrasing to make the point. Like you, I've had similar with PHSO, despite investigator being a nice chap. They just defer to whatever the trust tells them. Failed to use powers to seize original records in our case, yet determined no evidence of amendment?!

      2 replies 2 retweets 1 like
    7. Mike Stone‏ @MikeStone2_EoL Jan 20
      Replying to @C7RKY @kateheydonorg @katemasters67

      PHSO investigator told me 'we don't know what was discussed at that meeting, because the PCT did not keep a record'. I sent to PHSO 'well - I was at that meeting, why didn't you ask me what was discussed?'. PHSO promptly gave me a different 'investigator'.

      2 replies 2 retweets 1 like
    8. John Clarke‏ @C7RKY Jan 20
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      I'm going to guess (to borrow another common phrase) that the new investigator didn't make any difference to the overall outcome? I sent PHSO the relevant contemporaneous notes - why did I bother? I focused on police once I grasped the scale of PHSO issues from @phsothefacts.

      2 replies 3 retweets 1 like
    9. Mike Stone‏ @MikeStone2_EoL Jan 20
      Replying to @C7RKY @kateheydonorg and

      1/2 The second PHSO investigator 'sent me something flawed' in an e-mail - can't remember exactly what offhand. I pointed that out, and my complaint moved up to the Ombudsman (well - Ombudswoman) personally to deal with. What baffled me about the 1st person, was she asked me to

      1 reply 1 retweet 1 like
    10. Mike Stone‏ @MikeStone2_EoL Jan 20
      Replying to @MikeStone2_EoL @C7RKY and

      2/2 'better describe my issues' as a list, so I VERY CAREFULLY did that - then without telling me, instead of sending my own wording to the PCT, the PHSO woman changed my carefully-written wording to her own [flawed] version and sent that to the PHSO 'as my complaint'!

      2 replies 3 retweets 1 like
      John Clarke‏ @C7RKY Jan 20
      Replying to @MikeStone2_EoL @kateheydonorg and

      Why would they choose to rewrite already carefully chosen phrasing, one wonders? Did the changes make your concerns less clear, by any chance? I've lost count of the number of PHSO decisions I've found to be farcical. They're undoubtedly part of the problem, not the solution.

      5:37 AM - 20 Jan 2018
      • 2 Retweets
      • 1 Like
      • Kate Heydon Della Reynolds
      1 reply 2 retweets 1 like
        1. New conversation
        2. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @C7RKY @kateheydonorg and

          1/2 Absolutely - totally 'screwed up my issues' and very-largely misrepresented them, in the wording the PHSO person actually sent to the PCT. I think 'I was deeply pissed-off' by that, is the phrase I'm searching for! Ombudsman eventually said 'there was clearly some confusion

          1 reply 0 retweets 2 likes
        3. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @MikeStone2_EoL @C7RKY and

          2/2 between the PCT and you' - that I knew, and that was one of my issues I was taking to the PHSO!

          1 reply 0 retweets 1 like
        4. John Clarke‏ @C7RKY Jan 20
          Replying to @MikeStone2_EoL @kateheydonorg and

          I just laughed when PHSO concluded that a consent form hadn't been amended with just a photocopy to hand. Never mind their failure to recognise they were in possession of evidence proving a criminal act. The police expected PHSO to be able to determine that. They had no clue.

          1 reply 2 retweets 1 like
        5. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @C7RKY @kateheydonorg and

          I don't recall my experience of PHSO making me laugh at all - mind you, by the time I complained to the PHSO, 'I was already 'clinically' depressed'. BTW The first sign that I was 'exiting depression' was that I found I was again laughing at those 'absurd behaviour' 'jokes'.

          1 reply 0 retweets 1 like
        6. John Clarke‏ @C7RKY Jan 20
          Replying to @MikeStone2_EoL @kateheydonorg and

          I may have wrongfully painted an overly positive picture with that previous tweet - the laugh was more manic, than tickled. And I'm sorry to hear the effect it all had on you. I had to walk away for a while to avoid the same.

          1 reply 0 retweets 1 like
        7. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @C7RKY @kateheydonorg and

          It wasn't the PHSO that 'drove me bonkers' - it was the PCT! There was also a 'thing with a medical note' which I think really messed up my mind - I explained that in https://www.dignityincare.org.uk/Discuss-and-debate/download/299/ … which I only put online today in my thread at https://www.dignityincare.org.uk/Discuss-and-debate/Dignity-Champions-forum/Mike-Stones-PDFs-I-hope-to-post-various-PDFs-about-EoLMCACPR-in-this-thread/944/ …

          0 replies 1 retweet 1 like
        8. End of conversation

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