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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. Kate Heydon‏ @kateheydonorg Jan 18
      Replying to @ashkarmstrong @katemasters67 and

      I'm accustomed to (medical) mistakes now. I just assume that they'll be made, and am alert to look out for them; correct any significant ones that might affect my future care. Usually even those are impossible to get corrected in writing through correct channels; that's life...

      1 reply 1 retweet 1 like
    2. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @kateheydonorg @ashkarmstrong and

      @MikeAlphaOne Mike also had an issue about 'the correction of mistakes on documents'.

      1 reply 2 retweets 3 likes
    3. John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg and

      Really? May I ask on what document in particular, @MikeAlphaOne? And what 'mistake' did they feel the need to correct?

      1 reply 1 retweet 1 like
    4. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @C7RKY @kateheydonorg and

      It was Mike who had problems trying to get a mistake in his wife's 'medical notes' corrected.

      1 reply 0 retweets 3 likes
    5. Mike‏ @MikeAlphaOne Jan 19
      Replying to @MikeStone2_EoL @C7RKY and

      Vital information on my dying wife's "care plan". Despite that I dictated it, a "care co-ordinator" got it wrong twice before she grudgingly put it right! I was also accused of refusing to go to an MDT meeting that I was NOT notified of!

      1 reply 3 retweets 3 likes
    6. Kate Heydon‏ @kateheydonorg Jan 19
      Replying to @MikeAlphaOne @MikeStone2_EoL and

      That sounds distressing. Did you receive a letter AFTER the meeting had been held inviting, with a historical-date entered? (I was given a signed Bupa referral on 27th June 2013 DATED 10th September 2012. That was on GP file, rather than ACTUAL 21st September 2012 Bupa referral).

      1 reply 0 retweets 0 likes
    7. Mike‏ @MikeAlphaOne Jan 19
      Replying to @kateheydonorg @MikeStone2_EoL and

      No. It was recorded in the report of the MDT meeting that I "had refused to attend"!!!

      1 reply 2 retweets 1 like
    8. Kate Heydon‏ @kateheydonorg Jan 19
      Replying to @MikeAlphaOne @MikeStone2_EoL and

      That’s horrible, and genuinely insulting.. I’ve had comments made that I’ve ‘declined’ care that I was never offered; usually I find out (notes) that my previous GP declined it without involving me. Or even worse, it’s a CMA (cover my a’se) by a medic who failed to do their job.

      1 reply 0 retweets 0 likes
    9. Mike‏ @MikeAlphaOne Jan 19
      Replying to @kateheydonorg @MikeStone2_EoL and

      I wrote an article for the National Council for Palliative Care, about my wife's last few years. I have considered writing one about all thee shite that happened after her death but no bugger would believe it!

      4 replies 2 retweets 2 likes
    10. Mike Stone‏ @MikeStone2_EoL Jan 20
      Replying to @MikeAlphaOne @kateheydonorg and

      See https://www.dignityincare.org.uk/Discuss-and-debate/Dignity-Champions-forum/Mikes-Cheeky-Blog-Publish-and-be-damned-praised-or-ignored-the-most-likely-but-publish/896/ … Until more of 'us' get our experiences 'out there', 'there will not be the necessary 'NHS learning''. Is it difficult to publish our experiences? Yes, absolutely - I've just published my own problems with doing it at https://www.dignityincare.org.uk/Discuss-and-debate/download/299/ …pic.twitter.com/C3HWn6Ppnh

      1 reply 2 retweets 3 likes
      John Clarke‏ @C7RKY Jan 20
      Replying to @MikeStone2_EoL @MikeAlphaOne and

      Did you ever get a reply from Catherine Calderwood, out of interest?

      4:40 AM - 20 Jan 2018
      1 reply 0 retweets 0 likes
        1. New conversation
        2. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @C7RKY @MikeAlphaOne and

          1/2 Yes - I posted in one of my DiC pieces, that I put up the link to earlier today. Good reply - but I've yet to persuade 'Scotland' to stop using the phrase 'shared decision-making': although in her subsequent 'Realising Realistic Medicine' Catherine @CathCalderwood1 did

          1 reply 0 retweets 0 likes
        3. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @MikeStone2_EoL @C7RKY and

          2/2 explicitly point out that there is clear agreement about what 'shared decision making' actually means. Catherine's reply to me is in the 19/11/16 addition to my thread at https://www.dignityincare.org.uk/Discuss-and-debate/Dignity-Champions-forum/Mikes-Cheeky-Blog-Publish-and-be-damned-praised-or-ignored-the-most-likely-but-publish/896/ …

          0 replies 0 retweets 0 likes
        4. End of conversation

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