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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

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John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. John Clarke‏ @C7RKY Jan 18
      Replying to @kateheydonorg @MikeStone2_EoL @katemasters67

      John Clarke Retweeted

      I missed that Radio 4 thing, so I'll look out for that - thanks Kate. There's a lot that needs fixing about our healthcare environment. Candour needs to become a reality, but we've a long way to go. https://twitter.com/drnhs2018/status/948209781977812994 …

      John Clarke added,

      This Tweet is unavailable.
      2 replies 0 retweets 1 like
    2. Kate Masters‏ @katemasters67 Jan 18
      Replying to @C7RKY @kateheydonorg @MikeStone2_EoL

      Hence why everyone needs to hear experiences like Kathryn’s . She never mentioned her trust..a lot of learning in that fact alone.

      1 reply 1 retweet 1 like
    3. John Clarke‏ @C7RKY Jan 18
      Replying to @katemasters67 @kateheydonorg @MikeStone2_EoL

      Indeed. That being; if you're looking to protect your reputation, be honest with people about what went wrong and include them in improving safety, then maybe they won't feel the need to be shouting your name in a negative perspective. Seems like a good lesson to learn.

      1 reply 1 retweet 1 like
    4. Kate Heydon‏ @kateheydonorg Jan 18
      Replying to @C7RKY @katemasters67 @MikeStone2_EoL

      With my 2012 GP, he did immediately verbally apologise; though he explicitly stated that he was scared of being sued. No idea why, as I didn't threaten to sue for delayed DVT diagnosis; I asked to work with him to walk again, for access to NHS care re: anticoagulation oversight.

      3 replies 0 retweets 2 likes
    5. Kate Masters‏ @katemasters67 Jan 18
      Replying to @kateheydonorg @C7RKY @MikeStone2_EoL

      That’s the thinking that needs to change. All I wanted from Addenbrooke’s was answers and a correction of the DNR form under DPA. They told me DPA doesn’t apply and the rest is now public history.

      5 replies 3 retweets 2 likes
    6. Kate Heydon‏ @kateheydonorg Jan 18
      Replying to @katemasters67 @C7RKY @MikeStone2_EoL

      You might still make a difference though? I wrote to Andrew Lansley, our MP and minister for health, in 2012. He did nothing and didn't meet with me. But apparently Heidi Allen is less-useless, allegedly; is it worth writing to her and getting her involved in positive DNR change?

      1 reply 0 retweets 0 likes
    7. Kate Masters‏ @katemasters67 Jan 18
      Replying to @kateheydonorg @C7RKY @MikeStone2_EoL

      My dad took a legal case and won the right for people to know about DNACPR. A consultant at CUH is working on something called ReSPECT which I have mixed views on. However their CQC report said they are not following the ruling they lost, so change is a bit hit and miss

      3 replies 1 retweet 1 like
    8. Kate Masters‏ @katemasters67 Jan 18
      Replying to @katemasters67 @kateheydonorg and

      I’ve written to Hunt to get a national campaign on CPR but there is no political will. How’s your recuperation been/going?

      1 reply 0 retweets 1 like
    9. Kate Heydon‏ @kateheydonorg Jan 18
      Replying to @katemasters67 @C7RKY @MikeStone2_EoL

      I'm functionally mobile: I struggle with pain levels, use opioids otherwise I literally don't walk, & I'm annoyingly slow still. I can 'run' again with orthotics, RAL, an abnormal (trendelenburg) gait +foot clawing, +long recovery time. But, as yet not half-marathons as pre-2012.

      2 replies 0 retweets 0 likes
    10. Mike Stone‏ @MikeStone2_EoL Jan 19
      Replying to @kateheydonorg @katemasters67 @C7RKY

      I can understand why you are 'campaigning' - it is a bit peculiar (it is usually 'a bad experience' that gets people like Kate, you and me 'involved'' - then, we get 'you are too personally-involved to be objective' thrown at us, don't we?).

      2 replies 2 retweets 2 likes
      John Clarke‏ @C7RKY Jan 19
      Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

      Yes, I always thought it was a bit odd too. They seem to want 2 types of people involved. 1. Clinicians 2. Experts by experience (excluding those with actual experience, because it's too personal for them to be objective) So... clinicians then, mostly?

      4:16 AM - 19 Jan 2018
      • 1 Retweet
      • 2 Likes
      • Kate Heydon Kate Masters
      2 replies 1 retweet 2 likes
        1. New conversation
        2. Mike Stone‏ @MikeStone2_EoL Jan 19
          Replying to @C7RKY @kateheydonorg @katemasters67

          1/2 I think 'experts by experience' DO HAVE 'personal experience', as I understand it. The big problem is this: the professionals want us 'service users' to describe our experiences, then they want to go away and [the professionals on their own] think about our input, while THEY

          1 reply 1 retweet 2 likes
        3. Mike Stone‏ @MikeStone2_EoL Jan 19
          Replying to @MikeStone2_EoL @C7RKY and

          2/2 create their own 'behaviours/protocols'guidance'. We 'service users' need to be sitting INSIDE the groups which design the actual protocols/guidance to be used by the professionals http://www.bmj.com/content/350/bmj.h1846/rr … Not sure how we do that - or where we get users who understand law, etc

          1 reply 2 retweets 2 likes
        4. John Clarke‏ @C7RKY Jan 19
          Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

          My point was slightly tongue in cheek, but you're right - the end result always appears to be clinician led and it can feel as if lay evidence has been given a lower 'classification' in arriving at the overall conclusions sometimes.

          2 replies 2 retweets 1 like
        5. Mike Stone‏ @MikeStone2_EoL Jan 19
          Replying to @C7RKY @kateheydonorg @katemasters67

          Can't help feeling that we might be 'mingling' court rulings and day-to-day behaviour now: but there are huge issues with 'investigators' only believing what the clinicians wrote down (I've had that 'attitude' from a PHSO investigator, myself).

          1 reply 1 retweet 2 likes
        6. John Clarke‏ @C7RKY Jan 19
          Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

          Yes, I borrowed the phrasing to make the point. Like you, I've had similar with PHSO, despite investigator being a nice chap. They just defer to whatever the trust tells them. Failed to use powers to seize original records in our case, yet determined no evidence of amendment?!

          2 replies 2 retweets 1 like
        7. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @C7RKY @kateheydonorg @katemasters67

          PHSO investigator told me 'we don't know what was discussed at that meeting, because the PCT did not keep a record'. I sent to PHSO 'well - I was at that meeting, why didn't you ask me what was discussed?'. PHSO promptly gave me a different 'investigator'.

          2 replies 2 retweets 1 like
        8. John Clarke‏ @C7RKY Jan 20
          Replying to @MikeStone2_EoL @kateheydonorg @katemasters67

          I'm going to guess (to borrow another common phrase) that the new investigator didn't make any difference to the overall outcome? I sent PHSO the relevant contemporaneous notes - why did I bother? I focused on police once I grasped the scale of PHSO issues from @phsothefacts.

          2 replies 3 retweets 1 like
        9. Della Reynolds‏ @phsothefacts Jan 20
          Replying to @C7RKY @MikeStone2_EoL and

          Did the police deal with your complaint @C7RKY

          2 replies 1 retweet 1 like
        10. 22 more replies
        1. New conversation
        2. Kate Heydon‏ @kateheydonorg Jan 19
          Replying to @C7RKY @MikeStone2_EoL @katemasters67

          There was a useful learning event, held a number of years ago @ CUH. CEO, now left, though.. McNeil? I think? Circa 2014? It was a no-blame, learning opportunity. It was positive; I was in a team with a superb critical care matron (+ young trainee who made fun of my walking etc).

          1 reply 0 retweets 1 like
        3. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @kateheydonorg @C7RKY @katemasters67

          1/2 I'm not keeping up with this thread. However - re my own experience of making a complaint to the PHSO, I concluded 'if you are planning to complain about the NHS, the best advice is to make your second complaint, first'. Put simply, during your first experience of pursuing a

          2 replies 4 retweets 2 likes
        4. Mike Stone‏ @MikeStone2_EoL Jan 20
          Replying to @MikeStone2_EoL @kateheydonorg and

          2/2 complaint, the 'other side' understands how the complaints system works, and you don't: 6 months or a year later, you understand 'what I should have done, but didn't do, etc'. HUGE problem!

          2 replies 3 retweets 1 like
        5. Tweet unavailable
        6. Mike Stone‏ @MikeStone2_EoL Jan 22
          Replying to @r_rees14 @kateheydonorg and

          The problem is - HOW CAN you 'make your second complaint first'? Even if you are told about the problem, unless you've got a friend who has made a complaint and 'knows what to be aware of' actually 'sitting with you, when you 'complain'', you still won't spot the pitfalls?

          1 reply 1 retweet 2 likes
        7. End of conversation

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