I missed that Radio 4 thing, so I'll look out for that - thanks Kate. There's a lot that needs fixing about our healthcare environment. Candour needs to become a reality, but we've a long way to go. https://twitter.com/drnhs2018/status/948209781977812994 …
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1/2 I think 'experts by experience' DO HAVE 'personal experience', as I understand it. The big problem is this: the professionals want us 'service users' to describe our experiences, then they want to go away and [the professionals on their own] think about our input, while THEY
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2/2 create their own 'behaviours/protocols'guidance'. We 'service users' need to be sitting INSIDE the groups which design the actual protocols/guidance to be used by the professionals http://www.bmj.com/content/350/bmj.h1846/rr … Not sure how we do that - or where we get users who understand law, etc
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My point was slightly tongue in cheek, but you're right - the end result always appears to be clinician led and it can feel as if lay evidence has been given a lower 'classification' in arriving at the overall conclusions sometimes.
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Can't help feeling that we might be 'mingling' court rulings and day-to-day behaviour now: but there are huge issues with 'investigators' only believing what the clinicians wrote down (I've had that 'attitude' from a PHSO investigator, myself).
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Yes, I borrowed the phrasing to make the point. Like you, I've had similar with PHSO, despite investigator being a nice chap. They just defer to whatever the trust tells them. Failed to use powers to seize original records in our case, yet determined no evidence of amendment?!
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PHSO investigator told me 'we don't know what was discussed at that meeting, because the PCT did not keep a record'. I sent to PHSO 'well - I was at that meeting, why didn't you ask me what was discussed?'. PHSO promptly gave me a different 'investigator'.
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I'm going to guess (to borrow another common phrase) that the new investigator didn't make any difference to the overall outcome? I sent PHSO the relevant contemporaneous notes - why did I bother? I focused on police once I grasped the scale of PHSO issues from
@phsothefacts. -
Did the police deal with your complaint
@C7RKY - 22 more replies
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There was a useful learning event, held a number of years ago @ CUH. CEO, now left, though.. McNeil? I think? Circa 2014? It was a no-blame, learning opportunity. It was positive; I was in a team with a superb critical care matron (+ young trainee who made fun of my walking etc).
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1/2 I'm not keeping up with this thread. However - re my own experience of making a complaint to the PHSO, I concluded 'if you are planning to complain about the NHS, the best advice is to make your second complaint, first'. Put simply, during your first experience of pursuing a
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2/2 complaint, the 'other side' understands how the complaints system works, and you don't: 6 months or a year later, you understand 'what I should have done, but didn't do, etc'. HUGE problem!
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The problem is - HOW CAN you 'make your second complaint first'? Even if you are told about the problem, unless you've got a friend who has made a complaint and 'knows what to be aware of' actually 'sitting with you, when you 'complain'', you still won't spot the pitfalls?
End of conversation
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