Exactly! As opposed to the form being vulnerable to later amended, in order to try and justify any clinical action - or inaction - that was not in keeping with the consent obtained.
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Replying to @C7RKY @KaraChrome
Well - if you design a better form, you would have the problem of the entire form being substituted for a faked one. I suppose you would need to store copies of completed consent forms in a 'trusted third-party repository' as soon as the form was completed? Unlikely to happen.
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Replying to @MikeStone2_EoL @KaraChrome
3rd party not necessary. Some measures can prevent amendment, but the greatest protection comes from ensuring that the form makes it clear the pt should take their copy immediately after signing it, imho. Can't switch/amend it unnoticed, if the patient has a copy at home.
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Replying to @C7RKY @KaraChrome
1/2 How does 'give the patient a copy' work for patients who are in hospital, in the context of your 'staff cover-ups' issue? And - coming back today and about to trawl '100+ notifications' - I honestly think you are wrong - lots of 'cock-ups' yes, and manypic.twitter.com/kwfiwl7vtw
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2/2 NHS staff [probably justifiably I suspect] become 'very defensive and self-protective' during 'investigations', but I don't there is much deliberate 'wrong-doing and cover-up' within NHS doctors and nurses.
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Replying to @MikeStone2_EoL @KaraChrome
1/2 Actually, you're right about those isolated in hospital in this regard. I know of 1 individual who had consent form taken from bedside cabinet, so no protection there. Would still help large majority of pts though, so worth doing anyway, as no downside I can see.
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2/2 But you're absolutely wrong to dismiss what's going on as just cock-ups. Scale is a question, but this is premeditated. And you should look around twitter a little more before deciding there's not much deliberate cover-up in the NHS. I'm afraid you're wrong about that too.
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Replying to @C7RKY @KaraChrome
'look around twitter' - nooo! I'm sticking to my 'more cock-up than conspiracy' re clinicians: now, if you ask me about government policy, and might there be ulterior motives - a different question, entirely.
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Replying to @MikeStone2_EoL @KaraChrome
I'll perhaps ask you again in a year or so, when you've encountered more of us. You're a welcome addition to twitter. I'm glad
@DrMarkTaubert suggested you join. Now we just need a whip-round to get you online at home, so we don't have to wait for you to get to the library! :)2 replies 0 retweets 1 like -
It is interesting. I used to discuss EoL with clinicians, by e-mail, for about 6 or 7 years, but hardly any people on the 'user side'. Since joining Twitter, new contacts with other annoyed bereaved relatives. But - I still prefer e-mail, for anything at all complex.
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Many of those I've come to know on here will also talk on email/telephone too. This is just a hub, but a very powerful networking and information sharing tool, if used well.
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