1/2 There is also a question of properly 'taking in' a long consent form, at the time you are signing it. The 'delegation to local regions' issue - letting local clinicians figure out what works best - is a good idea if they get it right. It has the benefit of making people
1/2 You're right, this stems from being given reason to distrust, but it's also about regulation. My mother & I trusted implicitly however, as most do. And it transpires that it's possible to abuse that trust. Potentially systematically & at scale, when you look at the evidence.
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1/2 You cannot 'have a process to cover my major issue': an EoL patient at home, explains to a family carer late one evening 'I've now reached the point when I definitely don't want anyone to attempt CPR' but. before that has 'reached the records' the patient arrest and the
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2/2 family carer calls 999, explaining 'my dad made it clear to me last night, that he doesn't want CPR if his heart has stopped'. Either the 'mindset' is that 999 should believe the carer, or else not - currently it is 'to not believe the carer' which angers me!
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To use your word from earlier - tricky. Not all families have the same dynamic, so protecting the pt's right to life over the undocumented word of a relative? Yeah... just tricky. Hopefully not too many happen in such a short window like that?
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The point is - listening to 'I really would prefer to be dead now. from your dying dad, 'has a deep impact on you': subsequently being 'accused of lying' by 999 leaves you rightly 'furious' if you are [and surely most would be] one of the honest family carers.
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I can entirely understand that. Fewer times can be more emotional in life already, without the added insult of such an accusation. I'm sorry if that was your experience.
End of conversation
New conversation -
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2/2 That risk is acknowledged (see image). In any regulated environment, regulators are obliged to take steps to mitigate confirmed risk. Esp one as universal as this & with such potentially serious implications in the wrong hands. That's my take... for what it's worth.pic.twitter.com/87Bw6RdsUK
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