The strike-out recommendations are mine, btw. No-one tells you to do this & some may think it's 'not allowed'. It is. You can shape your consent, but only if you have the knowledge & confidence to do so.
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Keeping a copy makes sense - but all of this (your issue) is about 'distrust' when you think about why it is necessary: distrust is a very poor foundation for good care/behaviour, especially during end-of-life at home [as I keep pointing out, in BMJ rapid responses].
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1/2 You're right, this stems from being given reason to distrust, but it's also about regulation. My mother & I trusted implicitly however, as most do. And it transpires that it's possible to abuse that trust. Potentially systematically & at scale, when you look at the evidence.
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1/2 You cannot 'have a process to cover my major issue': an EoL patient at home, explains to a family carer late one evening 'I've now reached the point when I definitely don't want anyone to attempt CPR' but. before that has 'reached the records' the patient arrest and the
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2/2 family carer calls 999, explaining 'my dad made it clear to me last night, that he doesn't want CPR if his heart has stopped'. Either the 'mindset' is that 999 should believe the carer, or else not - currently it is 'to not believe the carer' which angers me!
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To use your word from earlier - tricky. Not all families have the same dynamic, so protecting the pt's right to life over the undocumented word of a relative? Yeah... just tricky. Hopefully not too many happen in such a short window like that?
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The point is - listening to 'I really would prefer to be dead now. from your dying dad, 'has a deep impact on you': subsequently being 'accused of lying' by 999 leaves you rightly 'furious' if you are [and surely most would be] one of the honest family carers.
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I can entirely understand that. Fewer times can be more emotional in life already, without the added insult of such an accusation. I'm sorry if that was your experience.
End of conversation
New conversation -
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1/2 How does 'give the patient a copy' work for patients who are in hospital, in the context of your 'staff cover-ups' issue? And - coming back today and about to trawl '100+ notifications' - I honestly think you are wrong - lots of 'cock-ups' yes, and manypic.twitter.com/kwfiwl7vtw
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2/2 NHS staff [probably justifiably I suspect] become 'very defensive and self-protective' during 'investigations', but I don't there is much deliberate 'wrong-doing and cover-up' within NHS doctors and nurses.
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1/2 Actually, you're right about those isolated in hospital in this regard. I know of 1 individual who had consent form taken from bedside cabinet, so no protection there. Would still help large majority of pts though, so worth doing anyway, as no downside I can see.
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2/2 But you're absolutely wrong to dismiss what's going on as just cock-ups. Scale is a question, but this is premeditated. And you should look around twitter a little more before deciding there's not much deliberate cover-up in the NHS. I'm afraid you're wrong about that too.
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'look around twitter' - nooo! I'm sticking to my 'more cock-up than conspiracy' re clinicians: now, if you ask me about government policy, and might there be ulterior motives - a different question, entirely.
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I'll perhaps ask you again in a year or so, when you've encountered more of us. You're a welcome addition to twitter. I'm glad
@DrMarkTaubert suggested you join. Now we just need a whip-round to get you online at home, so we don't have to wait for you to get to the library! :) -
Can you currently post URLs in your tweets? I've had intermittent issues with that for days, and the problem is now also afflicting
@DrMarkTaubert -
Twitter can be fickle sometimes. I assume you're on a PC? A refresh of the tab, or even a cut & paste into a new window entirely may help sometimes, but not always.
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