What do people think? For "lay" partner roles in healthcare, is it necessary to have had significant experience as a patient?
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@C7RKY@allyc375@katemasters67 that's cognitive distortion aka spin & victim blaming -
@Penbat1@allyc375@katemasters67 Gaslighting, of sorts. -
@C7RKY@allyc375@katemasters67 yes i hadnt thought of gaslighting & victim blaming link - just tweaked Wiki entries to link to each other -
@Penbat1@allyc375@katemasters67 Wow. I've never had a Wiki update happen 'live' mid-chat before... -
@C7RKY@katemasters67 I deliberately mention obscure things like "Sviatopolk the Accursed" to see how quickly@Penbat1 come up w the goods. -
@allyc375@C7RKY@katemasters67 shit - im being used :-( -
@Penbat1@C7RKY@katemasters67 Sorry. To make up for it, I did this one myself. https://en.wikipedia.org/wiki/Sviatopolk_I_of_Kiev …
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@C7RKY@allyc375@katemasters67 As a clinician, I need to be challenged by people who are not like me, and who may not actually like me. -
@elinlowri@allyc375@katemasters67 Have you ever considered volunteering to be cloned, Elin? We could do with another few thousand of you! -
@C7RKY@elinlowri@katemasters67 Now there's the answer....well said.
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@C7RKY@allyc375@katemasters67 I know some patients who would be valuable (but uncomfortable & perhaps unreliable or unforgiving!) lay reps -
@elinlowri@katemasters67@C7RKY I put my hands up to having been all of the above. Maybe that's what's needed - grit in oyster.
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@C7RKY@allyc375@katemasters67 But the set up favours those already able to navigate and comply with and conform to complex systems, sadly. -
@elinlowri@C7RKY@katemasters67 Twice lately I've heard "we don't want THAT type of patient" & that gets to me. Twin set & pearls only. -
@allyc375@elinlowri@C7RKY@katemasters67 ZHH So disappointing, and much more
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