Here you go John .from 'Toms Pride' blog @C7RKYpic.twitter.com/tXpJFjQQXt
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@C7RKY understood John..however would say that 'mainstream' bodies some 'statutory consultees' have serially failed patient/user interest>>
@C7RKY >> 'patient &a public forums' LINks PALS and now Lansleys baby... Healthwatch ..& not least PHSO ..so it's no wonder groups>>>
@C7RKY >>set up to do 'their own thing'..thing is to be very very clear on aims if do campaign on quality/safety issues..
@ianmsyme Couldn't agree more Ian. Lack of genuine formal representation is bound to spawn independent groups. I just want transparency.
@C7RKY ..yes transparency is fundamental...that the NHS Complaints process is still 'not fit for purpose' , protracted >>>
@C7RKY >biased against complainant, means out of sheer frustration and no doubt fury disparate groups will set up DIY campaigns confronting>
@C7RKY >>injustice..we've both done this ..as individuals..yes of course it's essential be transparent and open & still respect confidential
@ianmsyme Agreed. I'm in favour of groups outside the official circle representing us. As long as they actually represent us, of course!
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