RT PLEASE: Has anyone ever provided info to PATIENT CONCERN, this group who keep speaking for us in the media? > http://news.sky.com/story/1595862/transplant-patients-pin-hopes-on-law-change …
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@C7RKY I find most groups representing patients of concern as they often are focused on specific issues which probably don't represent >> -
@Cleverestcookie Not just me then? I've asked who these people are many times. They keep cropping up. Don't know anyone who's spoken to them -
@C7RKY@Cleverestcookie Lucrative industry no measure of how they bring about change.
End of conversation
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@C7RKY majority of patients. They need to be specific about what they're representing.Thanks. Twitter will use this to make your timeline better. UndoUndo
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