>>They do have a website now, here: http://patientconcern.org/ Although that's not always been available & it says little. Charity? NGO? What??
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@C7RKY I find most groups representing patients of concern as they often are focused on specific issues which probably don't represent >> -
@Cleverestcookie Not just me then? I've asked who these people are many times. They keep cropping up. Don't know anyone who's spoken to them -
@C7RKY@Cleverestcookie Lucrative industry no measure of how they bring about change.
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@C7RKY Never heard of them until now John.However given the Huge industry that has emerged in patient concerns not surprised to see another -
@noreenbo They've been speaking for us over many years, it seems. Quick search shows just how often. But how do they gather patient opinion? -
@C7RKY Many many orgs speaking for us for years without peaking to us.Interesting to see how they gather information -
@noreenbo Very Interesting, I agree. Don't dare to speak FOR me, unless you've first spoken WITH me... would be my thinking. -
@C7RKY Mine too..... -
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