I have a strong feeling that clinicians and scientists don't actually talk to patient advocates #ncri2015
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@C7RKY@katemasters67 and have the necessary same choices that everyone else has in every hosptial -
@abcdiagnosis@C7RKY that often heard phrase 'I just don't want it to be like this for anyone else..' Expert by Experience -
@katemasters67@C7RKY yes had it with my mum 6 years ago. Not listened to.. Everyone says the same. Nothing changes
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@C7RKY@abcdiagnosis sad thing is John it's not opposition at all in many cases..just an informed and critical eye. -
@katemasters67@C7RKY and trying to make the 'experience' better for all...
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