@ciarandevane you mis-read. NO evidence at all that care.data will improve care. Very different to "data" but maybe you were joking
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Replying to @neilbacon
@neilbacon Surprised you believe insight into whole patient pathway will not deliver benefit eg Netherlands, US ....3 replies 0 retweets 0 likes -
Replying to @ciarandevane
@ciarandevane and to be honest I'm shocked that someone in your position is not better standing up for individual patients. sad1 reply 1 retweet 1 like -
Replying to @neilbacon
@neilbacon We are. Patient organisations very clear transparency, and data sharing will improve healthcare. Sad to see clinical resistance.1 reply 0 retweets 0 likes -
Replying to @ciarandevane
@ciarandevane@neilbacon I'm with Neil on this. We pts look to people like you to act as our voice. This is as transparent as mud, frankly.1 reply 0 retweets 0 likes -
Replying to @ciarandevane
@ciarandevane No Ciaran. Honestly? It's been verging on sinister in the level of deception from the outset. Little has changed but PR level.1 reply 0 retweets 0 likes -
Replying to @ciarandevane
@ciarandevane For you to sleep on: When you redefine 'anonymised', even opt-out looks questionable. Goodnight Ciaran.pic.twitter.com/z7524fyoAb
1 reply 0 retweets 0 likes -
@ciarandevane Exactly. And if I were to walk you through the language games that are being played around that fact, you may be surprised.
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