#caredata PIA unclear on what opting out means for our data http://blogs.lse.ac.uk/politicsandpolicy/archives/40213 …
@LSEpoliticsblog
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Replying to @docneilb
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@LSEpoliticsblog that policy seems to have changed now http://medconfidential.org/2014/opt-out-fixed-for-now/ … ?1 reply 0 retweets 0 likes -
Replying to @docneilb
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@LSEpoliticsblog at present, my site says that no data uiploaded http://care-data.info1 reply 0 retweets 0 likes -
Replying to @docneilb
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@docneilb@LSEpoliticsblog And I think I explained to you last night Neil, that it shouldn't say that. Because it's wrong imho.#caredata1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@LSEpoliticsblog don't get me wrong, data will pass to HSCIC from GP systems Most aggregated, occ anonymised2 replies 0 retweets 0 likes -
Replying to @docneilb
@C7RKY@LSEpoliticsblog But I know of no occasions where pseudonymised or clearly identifiable info is routinely s251 is used for e.g. NDA2 replies 0 retweets 0 likes -
Replying to @docneilb
@C7RKY@LSEpoliticsblog but that's voluntary for practices and 9Nu0 would stop it My understanding remains no info as part of care.data1 reply 0 retweets 0 likes -
Replying to @docneilb
@docneilb@LSEpoliticsblog Tell me you're not playing word games too now? 'As part of#caredata'? Will HSCIC take it anyway? Yes. Misleading2 replies 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@LSEpoliticsblog I think it's important to encourage people who wish to control their data that the *only* option they have is 9Nu01 reply 0 retweets 0 likes -
Replying to @docneilb
@C7RKY@LSEpoliticsblog and 9Nu4 (and HES anonymisation I suppose) It may not be perfect, but it's better than doing nothing2 replies 0 retweets 0 likes
@docneilb @LSEpoliticsblog It's not the only thing the public can do. We can demand a genuine opt-out, not a fake. IF we're told the truth.
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