Pharma companies establishing policies for 3rd party access to their data. >
http://www.bmj.com/content/348/bmj.g1615 …
NO!!! #caredata will be passed on & on..
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@C7RKY see http://www.alltrials.net — you’re missing the context of how this is a good thing. Trial patients have already consented. -
@smithsam Can't see whole article (yet another subscription I need) but perhaps you can? How do we ensure sharing only happens with consent? -
@C7RKY see http://alltrials.net — if you don’t have consent, it’s not a legal clinical trial. -
@smithsam Appreciated, but I'm not looking at the trial itself, rather to whom that data is subsequently passed. Is that consented to also? -
@C7RKY informed consent to the trial data being analysed, and part of that is trial review. See name 5 here: http://www.alltrials.net/news/open-letter-to-ema-from-clinical-trial-participants/ … -
@smithsam No prob with data being shared back with 'doctors/regulators' as it says there. It shd be. But doesn't preclude likes of insurers?
End of conversation
New conversation -
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