NHS care.data messaging needs to change from "this will be good for you, trust us" to "please can we use your data, and this is why"
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Replying to @bryanglick
@bryanglick Modern healthcare continues to have a 'paternalistic' tone of voice when it comes to addressing the people who use it.1 reply 1 retweet 0 likes -
Replying to @ManeeshJuneja
I'd say it steps well beyond 'paternalistic', when it starts planning to bypass consent..
@ManeeshJuneja@bryanglickpic.twitter.com/i6HWJh53MG
2 replies 3 retweets 0 likes -
Replying to @C7RKY
@C7RKY@ManeeshJuneja ICO approved the "presumed opt-in" approach, but even they have been critical of how it worked in practice1 reply 0 retweets 0 likes -
Replying to @bryanglick
@bryanglick@ManeeshJuneja I think the ICO shd be ashamed for permitting junk mail disclosure +opt-in. But NHSEng deception since is worse.1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@ManeeshJuneja ICO can only regulate the law - presumed opt-in not illegal, but easy to argue it's not entirely ethical1 reply 0 retweets 0 likes -
Replying to @bryanglick
@bryanglick@ManeeshJuneja Sorry Bryan, I missed this tweet at the time. I think law is supposed to reflect the will of the people, but it >1 reply 0 retweets 0 likes
@bryanglick @ManeeshJuneja doesn't here. Junk mail disclosure, fake opt-out & 3-card-trick re GP/caredata/HSCIC? All v deceptive imho. Wrong
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