@markhoulder @iantownend @C7RKY @jappleby123 @JonInNotts @tkelsey1 is that right approach to data sharing, u must do it, tough? Nice...
@markhoulder @Privateallergy @iantownend @jappleby123 @JonInNotts @tkelsey1 That's how I see it, yes. Once data's taken, rules can change.
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@C7RKY@Privateallergy@iantownend@jappleby123 @JonInNotts rules could change regardless. HSCA changed rules. All laws do, by definition. -
@markhoulder@Privateallergy@iantownend@jappleby123 @JonInNotts Exactly. Which is why reassurances re how our data will be used are hollow -
@C7RKY@Privateallergy@iantownend@jappleby123 @JonInNotts so you should be worried about records at your GP also:rules there could change! -
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@markhoulder@Privateallergy@iantownend@jappleby123 @JonInNotts Apparently so now. Ths could drive pt/GP relationship back into dark ages -
@C7RKY@markhoulder@Privateallergy@jappleby123 @JonInNotts besides, its not a 1:1 relationship anymore. Its more like pt/GPs. -
@iantownend@markhoulder@Privateallergy@jappleby123 @JonInNotts So what? I choose a practice I trust. My consent for sharing ends there. -
@C7RKY@iantownend@Privateallergy@jappleby123 @JonInNotts How informed is your trust in GP? Do they have good DP process/safeguards? -
@C7RKY@iantownend@Privateallergy@jappleby123 @JonInNotts for all faults in care.data, is *relatively* well publicised & open to scrutiny - 3 more replies
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