NHS care.data messaging needs to change from "this will be good for you, trust us" to "please can we use your data, and this is why"
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Replying to @bryanglick
@bryanglick Modern healthcare continues to have a 'paternalistic' tone of voice when it comes to addressing the people who use it.1 reply 1 retweet 0 likes -
Replying to @ManeeshJuneja
I'd say it steps well beyond 'paternalistic', when it starts planning to bypass consent..
@ManeeshJuneja@bryanglickpic.twitter.com/i6HWJh53MG
2 replies 3 retweets 0 likes -
Replying to @C7RKY
@C7RKY@bryanglick Well, it was stated in 2011 by Cameron that every NHS patient should be a research patient http://www.bbc.co.uk/news/uk-16026827 …1 reply 1 retweet 0 likes -
Replying to @ManeeshJuneja
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@ManeeshJuneja@bryanglick Actually, he said every 'willing' pt. He also says "All consented to. All anonymous". Both untrue re#caredata.1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@bryanglick Ultimately, NHS England serves the needs of 53 million, not the other way round. Or am I mistaken?1 reply 0 retweets 0 likes
@ManeeshJuneja @bryanglick You shouldn't be mistaken, but in truth, NHS England has purposefully tried to deceive the 53 million here, imho.
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