NHS care.data messaging needs to change from "this will be good for you, trust us" to "please can we use your data, and this is why"
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@C7RKY@ManeeshJuneja ICO approved the "presumed opt-in" approach, but even they have been critical of how it worked in practice -
@bryanglick@ManeeshJuneja I think the ICO shd be ashamed for permitting junk mail disclosure +opt-in. But NHSEng deception since is worse. -
@C7RKY@ManeeshJuneja ICO can only regulate the law - presumed opt-in not illegal, but easy to argue it's not entirely ethical -
@bryanglick@ManeeshJuneja Sorry Bryan, I missed this tweet at the time. I think law is supposed to reflect the will of the people, but it > -
@bryanglick@ManeeshJuneja doesn't here. Junk mail disclosure, fake opt-out & 3-card-trick re GP/caredata/HSCIC? All v deceptive imho. Wrong -
@C7RKY I wouldn't disagree with any of what you say there John
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@C7RKY@bryanglick Well, it was stated in 2011 by Cameron that every NHS patient should be a research patient http://www.bbc.co.uk/news/uk-16026827 … -
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@ManeeshJuneja@bryanglick Actually, he said every 'willing' pt. He also says "All consented to. All anonymous". Both untrue re#caredata. -
@C7RKY@bryanglick Ultimately, NHS England serves the needs of 53 million, not the other way round. Or am I mistaken? -
@ManeeshJuneja@bryanglick You shouldn't be mistaken, but in truth, NHS England has purposefully tried to deceive the 53 million here, imho.
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