NHS care.data messaging needs to change from "this will be good for you, trust us" to "please can we use your data, and this is why"
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Replying to @bryanglick
@bryanglick Bottom line. If you don't own your personal health data, you can't really control who can access it or profit from it#caredata1 reply 2 retweets 2 likes -
Replying to @ManeeshJuneja
@ManeeshJuneja We do own our health records - ICO confirms this - but have no way to access them freely. That control, as you say, is vital1 reply 0 retweets 0 likes -
Replying to @bryanglick
@bryanglick so in England, the electronic record of my Dx, Rx etc is owned wholly by me? Do you have a link to ICO statement?1 reply 0 retweets 0 likes -
Replying to @ManeeshJuneja
@ManeeshJuneja Here's the ICO statement: http://ow.ly/tOls3 - treats medical records as personal data under DPA1 reply 1 retweet 0 likes -
Replying to @bryanglick
I'm confused
@bryanglick. Draft Patients Data Act 2014 says it's for pts to 'own, control & share..'? http://www.patients4data.co.uk/files/Patient_Data_Bill_Draft.pdf …@ManeeshJuneja1 reply 1 retweet 0 likes
...is that just reinforcing the patients' ownership then, rather than a change current rules?
@bryanglick @ManeeshJuneja
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