@MatSilk @medConfidential @GeraintLewis Article 8. Right to privacy. I think failure to offer complete opt-out +crap consent may breach this
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Replying to @C7RKY
@C7RKY@medConfidential@GeraintLewis Does anonymous and pseudonymous data sharing contradict this? Not in my view.1 reply 0 retweets 0 likes -
Replying to @MatSilk
@MatSilk@medConfidential@GeraintLewis You should be able to express your consent to share on that view then. But my choice is not on offer1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@medConfidential@GeraintLewis I'm still unable to fathom why individuals don't want to help wider society by sharing data this way.2 replies 0 retweets 0 likes -
Replying to @JuliaHCox
@JuliaHCox@C7RKY But if it is, as I understand, just going into HSCIC, then I see no issue with the system.1 reply 0 retweets 0 likes -
Replying to @MatSilk
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@MatSilk@JuliaHCox Just going to HSCIC? Why do you think that's no issue? a We've been given no choice b It's fully ID'able Why's that ok?1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@JuliaHCox The choice bit is another argument. It's only an issue about what's shared externally, HSCIC aren't using it nefariously1 reply 0 retweets 0 likes -
Replying to @MatSilk
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@MatSilk@JuliaHCox That's where we fundamentally disagree. It's not just another argument, it's THE argument. Everything else comes 2nd.1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@JuliaHCox You're right, yes. For me it's about what happens to the data. Choice part second (comms issue).1 reply 0 retweets 0 likes
.@MatSilk @JuliaHCox Data sharing can only be determined with due consideration for *individual* consent, according to HSCIC's own guidance.
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