Sorry @GeraintLewis you are HAPPY that 45% of adults in England know nothing about #caredata?! http://www.bbc.co.uk/news/health-26187980# …? You should be ashamed
@MatSilk @medConfidential @GeraintLewis Article 8. Right to privacy. I think failure to offer complete opt-out +crap consent may breach this
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@C7RKY@medConfidential@GeraintLewis Does anonymous and pseudonymous data sharing contradict this? Not in my view. -
@MatSilk@medConfidential@GeraintLewis You should be able to express your consent to share on that view then. But my choice is not on offer -
@C7RKY@medConfidential@GeraintLewis I'm still unable to fathom why individuals don't want to help wider society by sharing data this way. -
@MatSilk@medConfidential@GeraintLewis Point is, it's not your place to fathom. Consent guidelines make that clear. http://www.gmc-uk.org/guidance/ethical_guidance/consent_guidance_respecting_patients_decision.asp … -
@MatSilk@medConfidential@GeraintLewis I know that relates to examination or treatment, but the principle extends into this area.
End of conversation
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