@C7RKY Part of the challenge is informing all patients and then registering their choice. People won’t go to a website unless they need to
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Replying to @amirhannan
@C7RKY So a number of patients are stumbling across#CareData by accident and then get angry wondering y they did not know about it3 replies 3 retweets 0 likes -
Replying to @amirhannan
@amirhannan That was going to be my next qn: what % of pts do you think have consciously chosen to opt into care.data & what % have no idea?1 reply 0 retweets 0 likes -
Replying to @amirhannan
@C7RKY But focus should remain on encouraging patients to get#RecordsAccessAndUnderstanding In the future they could choose to share data1 reply 0 retweets 0 likes -
Replying to @amirhannan
@amirhannan Perhaps you know something I don't...does that in some way impact on pt consent for the planned care.data share in March too?1 reply 0 retweets 0 likes -
Replying to @amirhannan
@C7RKY To facilitate this, patients need to have#RecordsAccessAndUnderstanding C my tweets from this morning1 reply 0 retweets 0 likes -
Replying to @amirhannan
@amirhannan Indeed. Although I'd suggest the care.data March deadline may be more pressing part in the short term. No 'unreleasing' it later1 reply 0 retweets 0 likes
@amirhannan Not sure care.data ever had much confidence from pts? More a case of managing to stay 'under the radar' & hope pts don't notice.
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