@C7RKY @tianran @Jarmann @Freedland I agree. Could have done a better job myself
-
-
Replying to @Cleverestcookie
@Cleverestcookie@tianran@Jarmann@Freedland Quite! I wouldn't mind so much if it wasn't so critical & the 'anonymity' wasn't such a joke.3 replies 1 retweet 0 likes -
Replying to @C7RKY
@C7RKY@tianran@Jarmann@Freedland the right level. Think that needs looking at.1 reply 0 retweets 0 likes -
Replying to @Cleverestcookie
@Cleverestcookie@tianran@Jarmann@Freedland I don't think the anonymity is anywhere near good enough once in private hands. And we give >1 reply 0 retweets 0 likes -
Replying to @C7RKY
@Cleverestcookie@tianran@Jarmann@Freedland the data away at cost, so no funds to police it once it's handed over? Way too risky for me.1 reply 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@tianran@Jarmann@Freedland but restrictions on what is handed over. Requesting org has to fulfil criteria at the diff levels1 reply 0 retweets 0 likes -
Replying to @Cleverestcookie
@Cleverestcookie@tianran@Jarmann@Freedland Sure, but private companies don't always follow the rules. Big pharma being a pointed example.2 replies 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@tianran@Jarmann@Freedland 'trusted' recipient of non-anonymised data without patient agreement eg for trial participation1 reply 0 retweets 0 likes -
Replying to @Cleverestcookie
@Cleverestcookie@tianran@Jarmann@Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it2 replies 0 retweets 0 likes -
Replying to @C7RKY
@C7RKY@tianran@Jarmann@Freedland and the advance of medicine may halt. Risk balance of harm vs benefit preferable in my view.2 replies 0 retweets 1 like
@Cleverestcookie @tianran @Jarmann @Freedland I accept that. Not a long term position. But for once, I embrace the precautionary principle.
Loading seems to be taking a while.
Twitter may be over capacity or experiencing a momentary hiccup. Try again or visit Twitter Status for more information.