@C7RKY @tianran @Jarmann @Freedland agree the comms has been shocking. However, leaflet through the door this week. Saw ad in paper recently
@Cleverestcookie @tianran @Jarmann @Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it
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@C7RKY@tianran@Jarmann@Freedland ok, let's share nothing. Zero risk. That was easy -
@Cleverestcookie@tianran@Jarmann@Freedland It was, wasn't it? And I'm sorry to say it, but that would suit me just fine vs alternative. -
@C7RKY@tianran@Jarmann@Freedland if we accept that sharing is unsafe then we need to remove existing sharing as unsafe too. -
@Cleverestcookie@tianran@Jarmann@Freedland I'd agree with that tbh. But I think the risk increases hugely when data sent to private orgs. -
@C7RKY@tianran@Jarmann@Freedland but some is going now. IME private orgs no less trustworthy than public ones - plenty of data leaked! -
@Cleverestcookie@tianran@Jarmann@Freedland Fair point. I think knowing how industry worships profits over all else, makes me nervous tho. -
@C7RKY@tianran@Jarmann@Freedland but I can't see what they would do with identifiable data. Not like US where can advertise direct to pat -
@Cleverestcookie@tianran@Jarmann@Freedland Really? I can. Nobody buys this info unless they can profit from it. I see several such uses. - 6 more replies
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@C7RKY@tianran@Jarmann@Freedland and the advance of medicine may halt. Risk balance of harm vs benefit preferable in my view. -
@Cleverestcookie@tianran@Jarmann@Freedland I accept that. Not a long term position. But for once, I embrace the precautionary principle.
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