@Cleverestcookie @Jarmann @Freedland yes leaving out sexual health and transgender ops... Evidently risk of reidentification too great?
@Cleverestcookie @tianran @Jarmann @Freedland the data away at cost, so no funds to police it once it's handed over? Way too risky for me.
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@C7RKY@tianran@Jarmann@Freedland but restrictions on what is handed over. Requesting org has to fulfil criteria at the diff levels -
@Cleverestcookie@tianran@Jarmann@Freedland Sure, but private companies don't always follow the rules. Big pharma being a pointed example. -
@C7RKY@tianran@Jarmann@Freedland 'trusted' recipient of non-anonymised data without patient agreement eg for trial participation -
@Cleverestcookie@tianran@Jarmann@Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it -
@C7RKY@tianran@Jarmann@Freedland ok, let's share nothing. Zero risk. That was easy -
@Cleverestcookie@tianran@Jarmann@Freedland It was, wasn't it? And I'm sorry to say it, but that would suit me just fine vs alternative. -
@C7RKY@tianran@Jarmann@Freedland if we accept that sharing is unsafe then we need to remove existing sharing as unsafe too. -
@Cleverestcookie@tianran@Jarmann@Freedland I'd agree with that tbh. But I think the risk increases hugely when data sent to private orgs. - 10 more replies
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