@Jarmann @tianran @Freedland but all data stored on GP record isn't transferring
@Cleverestcookie @tianran @Jarmann @Freedland I don't think the anonymity is anywhere near good enough once in private hands. And we give >
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@Cleverestcookie@tianran@Jarmann@Freedland the data away at cost, so no funds to police it once it's handed over? Way too risky for me. -
@C7RKY@tianran@Jarmann@Freedland but restrictions on what is handed over. Requesting org has to fulfil criteria at the diff levels -
@Cleverestcookie@tianran@Jarmann@Freedland Sure, but private companies don't always follow the rules. Big pharma being a pointed example. -
@C7RKY@tianran@Jarmann@Freedland 'trusted' recipient of non-anonymised data without patient agreement eg for trial participation -
@Cleverestcookie@tianran@Jarmann@Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it -
@C7RKY@tianran@Jarmann@Freedland ok, let's share nothing. Zero risk. That was easy -
@Cleverestcookie@tianran@Jarmann@Freedland It was, wasn't it? And I'm sorry to say it, but that would suit me just fine vs alternative. -
@C7RKY@tianran@Jarmann@Freedland if we accept that sharing is unsafe then we need to remove existing sharing as unsafe too. - 11 more replies
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