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C7RKY's profile
John Clarke
John Clarke
John Clarke
@C7RKY

Tweets

John Clarke

@C7RKY

Of course views all mine. All without prejudice. Just a regular chap after all. Oh...and RT's may equally imply ridicule as endorsement.

UK
Joined December 2011

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    1. Randeep Ramesh‏Verified account @tianran 31 Jan 2014
      Replying to @Freedland

      .@Freedland FAQ link http://www.england.nhs.uk/wp-content/uploads/2014/01/cd-patient-faqs.pdf …. Answer designed to confuse. Companies will be able to access pseudonymised ie personal data.

      2 replies 2 retweets 0 likes
    2. BrianJarman‏ @Jarmann 1 Feb 2014
      Replying to @tianran

      GP data include full medication, mental health review & care plan, etc & there’s a “risk that you might be identified.” @tianran @Freedland

      2 replies 5 retweets 2 likes
    3. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
      Replying to @Jarmann

      @Jarmann @tianran @Freedland but all data stored on GP record isn't transferring

      2 replies 0 retweets 0 likes
    4. Randeep Ramesh‏Verified account @tianran 1 Feb 2014
      Replying to @Cleverestcookie

      @Cleverestcookie @Jarmann @Freedland yes leaving out sexual health and transgender ops... Evidently risk of reidentification too great?

      4 replies 0 retweets 0 likes
    5. John Clarke‏ @C7RKY 1 Feb 2014
      Replying to @tianran

      @tianran @Cleverestcookie @Jarmann @Freedland 99.4% chance of being reidentified from our NHS details being shared? > http://dare.uva.nl/document/204557 

      3 replies 2 retweets 1 like
    6. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
      Replying to @C7RKY

      @C7RKY @tianran @Jarmann @Freedland for me there are far greater risks and on balance I support it.

      2 replies 1 retweet 0 likes
    7. John Clarke‏ @C7RKY 1 Feb 2014
      Replying to @Cleverestcookie

      @Cleverestcookie @tianran @Jarmann @Freedland That's your personal *informed* decision. Most will have this risk imposed w/o ever consenting

      1 reply 1 retweet 0 likes
    8. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
      Replying to @C7RKY

      @C7RKY @tianran @Jarmann @Freedland agree the comms has been shocking. However, leaflet through the door this week. Saw ad in paper recently

      1 reply 1 retweet 0 likes
    9. John Clarke‏ @C7RKY 1 Feb 2014
      Replying to @Cleverestcookie

      @Cleverestcookie @tianran @Jarmann @Freedland It's just not good enough for me. It's junk mail disclosure to acquire crucial implied consent

      1 reply 1 retweet 0 likes
    10. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
      Replying to @C7RKY

      @C7RKY @tianran @Jarmann @Freedland I agree. Could have done a better job myself

      1 reply 0 retweets 0 likes
      John Clarke‏ @C7RKY 1 Feb 2014
      Replying to @Cleverestcookie

      @Cleverestcookie @tianran @Jarmann @Freedland Quite! I wouldn't mind so much if it wasn't so critical & the 'anonymity' wasn't such a joke.

      1:46 AM - 1 Feb 2014
      • 1 Retweet
      • Kate Masters
      3 replies 1 retweet 0 likes
        1. New conversation
        2. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @C7RKY

          @C7RKY @tianran @Jarmann @Freedland the right level. Think that needs looking at.

          1 reply 0 retweets 0 likes
        3. John Clarke‏ @C7RKY 1 Feb 2014
          Replying to @Cleverestcookie

          @Cleverestcookie @tianran @Jarmann @Freedland I don't think the anonymity is anywhere near good enough once in private hands. And we give >

          1 reply 0 retweets 0 likes
        4. John Clarke‏ @C7RKY 1 Feb 2014
          Replying to @C7RKY

          @Cleverestcookie @tianran @Jarmann @Freedland the data away at cost, so no funds to police it once it's handed over? Way too risky for me.

          1 reply 0 retweets 0 likes
        5. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @C7RKY

          @C7RKY @tianran @Jarmann @Freedland but restrictions on what is handed over. Requesting org has to fulfil criteria at the diff levels

          1 reply 0 retweets 0 likes
        6. John Clarke‏ @C7RKY 1 Feb 2014
          Replying to @Cleverestcookie

          @Cleverestcookie @tianran @Jarmann @Freedland Sure, but private companies don't always follow the rules. Big pharma being a pointed example.

          2 replies 0 retweets 0 likes
        7. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @C7RKY

          @C7RKY @tianran @Jarmann @Freedland 'trusted' recipient of non-anonymised data without patient agreement eg for trial participation

          1 reply 0 retweets 0 likes
        8. John Clarke‏ @C7RKY 1 Feb 2014
          Replying to @Cleverestcookie

          @Cleverestcookie @tianran @Jarmann @Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it

          2 replies 0 retweets 0 likes
        9. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @C7RKY

          @C7RKY @tianran @Jarmann @Freedland ok, let's share nothing. Zero risk. That was easy

          1 reply 0 retweets 0 likes
        10. 13 more replies
        1. New conversation
        2. BrianJarman‏ @Jarmann 1 Feb 2014
          Replying to @C7RKY

          Usual suspects BMA, RCGP, NHSE, HSCIC would support it but *patients* should opt in to GP data. @C7RKY @Cleverestcookie @tianran @Freedland

          1 reply 2 retweets 1 like
        3. Randeep Ramesh‏Verified account @tianran 1 Feb 2014
          Replying to @Jarmann

          @Jarmann @C7RKY @Cleverestcookie @Freedland thank you Prof!

          1 reply 0 retweets 0 likes
        4. BrianJarman‏ @Jarmann 1 Feb 2014
          Replying to @tianran

          @tianran @C7RKY @Cleverestcookie @Freedland I’m glad we agree on this.

          1 reply 0 retweets 0 likes
        5. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @Jarmann

          @Jarmann @tianran @C7RKY @Freedland I find I agree completely with very few people

          1 reply 0 retweets 1 like
        6. Randeep Ramesh‏Verified account @tianran 1 Feb 2014
          Replying to @Cleverestcookie

          @Cleverestcookie @Jarmann @C7RKY @Freedland more in common than we'd ever let on! Ho ho!

          1 reply 0 retweets 2 likes
        7. BrianJarman‏ @Jarmann 1 Feb 2014
          Replying to @tianran

          @tianran @Cleverestcookie @C7RKY @Freedland you never know.

          1 reply 0 retweets 0 likes
        8. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @Jarmann

          @Jarmann @tianran @C7RKY @Freedland just shows that looking in detail and not accepting others' views wholesale!

          1 reply 0 retweets 0 likes
        9. John Clarke‏ @C7RKY 1 Feb 2014
          Replying to @Cleverestcookie

          @Cleverestcookie @Jarmann @tianran @Freedland Absolutely. Evidence-based opinions are the only true value, not unlike evidence-based care.

          0 replies 0 retweets 0 likes
        10. End of conversation
        1. Cathy Cooke‏ @Cleverestcookie 1 Feb 2014
          Replying to @C7RKY

          @C7RKY @tianran @Jarmann @Freedland the 'anonymity' is ok providing the controls are adhered to and decisions are made by right people at...

          0 replies 0 retweets 0 likes
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