.@Freedland FAQ link http://www.england.nhs.uk/wp-content/uploads/2014/01/cd-patient-faqs.pdf …. Answer designed to confuse. Companies will be able to access pseudonymised ie personal data.
-
-
@C7RKY@tianran@Jarmann@Freedland the right level. Think that needs looking at. -
@Cleverestcookie@tianran@Jarmann@Freedland I don't think the anonymity is anywhere near good enough once in private hands. And we give > -
@Cleverestcookie@tianran@Jarmann@Freedland the data away at cost, so no funds to police it once it's handed over? Way too risky for me. -
@C7RKY@tianran@Jarmann@Freedland but restrictions on what is handed over. Requesting org has to fulfil criteria at the diff levels -
@Cleverestcookie@tianran@Jarmann@Freedland Sure, but private companies don't always follow the rules. Big pharma being a pointed example. -
@C7RKY@tianran@Jarmann@Freedland 'trusted' recipient of non-anonymised data without patient agreement eg for trial participation -
@Cleverestcookie@tianran@Jarmann@Freedland Exactly. Trusted by whom? Not the person who's data is being shared if they aren't aware of it -
@C7RKY@tianran@Jarmann@Freedland ok, let's share nothing. Zero risk. That was easy - 13 more replies
New conversation -
-
-
Usual suspects BMA, RCGP, NHSE, HSCIC would support it but *patients* should opt in to GP data.
@C7RKY@Cleverestcookie@tianran@Freedland -
@Jarmann@C7RKY@Cleverestcookie@Freedland thank you Prof! -
@tianran@C7RKY@Cleverestcookie@Freedland I’m glad we agree on this. -
@Jarmann@tianran@C7RKY@Freedland I find I agree completely with very few people -
@Cleverestcookie@Jarmann@C7RKY@Freedland more in common than we'd ever let on! Ho ho! -
@tianran@Cleverestcookie@C7RKY@Freedland you never know. -
@Jarmann@tianran@C7RKY@Freedland just shows that looking in detail and not accepting others' views wholesale! -
@Cleverestcookie@Jarmann@tianran@Freedland Absolutely. Evidence-based opinions are the only true value, not unlike evidence-based care.
End of conversation
New conversation -
-
-
@C7RKY@tianran@Jarmann@Freedland the 'anonymity' is ok providing the controls are adhered to and decisions are made by right people at...Thanks. Twitter will use this to make your timeline better. UndoUndo
-
Loading seems to be taking a while.
Twitter may be over capacity or experiencing a momentary hiccup. Try again or visit Twitter Status for more information.