Had a v poorly little boy to look after for the last 4 days, (mercifully through the worst now). And next to worry for my son's wellbeing, do you know what the overriding feeling was? Fear. Fear of the medical profession getting their hands on my son. Are you proud of yourselves?
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Replying to @C7RKY
You might be interested in taking a look at our campaign? We are all ordinary families who didn't expect to find ourselves in this position.http://Timeforaction.org.uk
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Replying to @deddingtonian
Thank you Helen. Interesting website - I'll take a look through that. My son would be one of the MMR statistics, so I understand the nature of your concerns.
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Replying to @C7RKY
Thank you and so sorry about your son. We've been updating the website so hope you find it interesting. Are you campaigning on something particular?
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Replying to @deddingtonian
John Clarke Retweeted John Clarke
Thank you. I'm presuming you have similar cause to be involved too, so I imagine you understand more than most. I don't 'campaign' for any one thing tbh. Fighting this war on many fronts wherever I see patient risk. But this was where my journey started:https://twitter.com/c7rky/status/601118759995187201?s=21 …
John Clarke added,
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Replying to @C7RKY
Thank you. I'm so sorry about what happened. My daughter and others have experienced long term illness after receiving the HPV vaccine. In the process have learnt a lot about clinical trials and how medicines get to market.
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Replying to @deddingtonian
John Clarke Retweeted John Clarke
I've been following the story - I'm so sorry to hear your family is one of those affected. It's caused me to keep my eye on similar issues to yourself by the sounds of things. Did you pick up on this recent development over the pond?https://twitter.com/c7rky/status/1018483805827551233?s=21 …
John Clarke added,
John Clarke @C7RKYTHREAD In 1986, the US passed the Vaccine Injury Compensation Act. This removed all liability from pharma companies for any harm their vaccines cause - and with it, any incentive to make safe vaccines In recognition of this problem, the Act made HHS responsible for safety insteadShow this thread2 replies 0 retweets 0 likes -
Replying to @C7RKY
Thank you, yes I have. Our group is excited that this study has just been published in the BMJhttps://ebm.bmj.com/content/early/2018/07/27/bmjebm-2018-111012 …
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Replying to @deddingtonian
John Clarke Retweeted John Clarke
That's astonishing. And SO disappointing. I've always held Cochrane in high regard, but that's unforgivable. I can't see all the text; do they suggest inclusion of all the trials would affect the conclusions too? Wouldn't be a surprise, given past form:https://twitter.com/c7rky/status/958389335778381824?s=21 …
John Clarke added,
John Clarke @C7RKYReplying to @MikeStone2_EoL @billdossett and 41 othersI think these particular rivers run much deeper, tbh Mike. "Again and again, we have evidence of unpublished results that, when combined with the published results, make the drugs suddenly look not only no longer effective but harmful" Fiona Godlee https://publications.parliament.uk/pa/cm201314/cmselect/cmpubacc/uc295-i/uc295.pdf …3 replies 0 retweets 0 likes -
Replying to @C7RKY
This will interest you too:" By the law of Garbage In Garbage Out, whatever we produce in our reviews will be systematically assembled and synthesised garbage with a nice Cochrane logo on it."https://ebm.bmj.com/content/23/2/46
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Excellent steer, thank you Helen. Clinical trials and the publishing of them is a real soapbox subject for me, so very interesting to watch this one develop.
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