Had a v poorly little boy to look after for the last 4 days, (mercifully through the worst now). And next to worry for my son's wellbeing, do you know what the overriding feeling was? Fear. Fear of the medical profession getting their hands on my son. Are you proud of yourselves?
Thank you. I'm presuming you have similar cause to be involved too, so I imagine you understand more than most. I don't 'campaign' for any one thing tbh. Fighting this war on many fronts wherever I see patient risk. But this was where my journey started:https://twitter.com/c7rky/status/601118759995187201?s=21 …
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Thank you. I'm so sorry about what happened. My daughter and others have experienced long term illness after receiving the HPV vaccine. In the process have learnt a lot about clinical trials and how medicines get to market.
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I've been following the story - I'm so sorry to hear your family is one of those affected. It's caused me to keep my eye on similar issues to yourself by the sounds of things. Did you pick up on this recent development over the pond?https://twitter.com/c7rky/status/1018483805827551233?s=21 …
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Thank you, yes I have. Our group is excited that this study has just been published in the BMJhttps://ebm.bmj.com/content/early/2018/07/27/bmjebm-2018-111012 …
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That's astonishing. And SO disappointing. I've always held Cochrane in high regard, but that's unforgivable. I can't see all the text; do they suggest inclusion of all the trials would affect the conclusions too? Wouldn't be a surprise, given past form:https://twitter.com/c7rky/status/958389335778381824?s=21 …
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This will interest you too:" By the law of Garbage In Garbage Out, whatever we produce in our reviews will be systematically assembled and synthesised garbage with a nice Cochrane logo on it."https://ebm.bmj.com/content/23/2/46
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Excellent steer, thank you Helen. Clinical trials and the publishing of them is a real soapbox subject for me, so very interesting to watch this one develop.
End of conversation
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