Susan Schaeffer

@BiotechSusan

President & CEO , former Editor . Preparing patients to contribute their expertise to clinical development, regulation, and access.

Vrijeme pridruživanja: rujan 2015.

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  1. Prikvačeni tweet
    3. ožu 2019.

    Exciting news from : The Patients' Academy for Research Advocacy is now a 501(c)(3) nonprofit!

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  2. proslijedio/la je Tweet
    2. velj

    Folks - is continuing to cover the outbreak, which is outside the paywall. This contains the therapeutic & preventive developments, policy actions, and biopharma response.

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  3. 1. velj
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  4. 1. velj

    I'm excited to join this March 24 workshop on digital health as a new member of 's Forum on Drug Discovery, Development, and Translation. The workshop is open to the public! Details below:

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  5. 29. sij

    Great news about a pair of rockstars— and . Congratulations to you both!

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  6. proslijedio/la je Tweet
    16. sij

    The media roundup at is becoming a staple for winding down week. Great discussion w/ industry journalists

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  7. 13. sij

    Another good thread today, this one from . IMO, developing methodologies that enable the use of real-world evidence in development and regulatory decision-making *is* standing up for science.

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  8. 13. sij
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  9. 12. sij

    What a way to start JPM week—a show at my favorite indie venue!

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  10. proslijedio/la je Tweet
    17. pro 2019.
    Odgovor korisnicima i sljedećem broju korisnika:

    Patient advocacy means aligning incentives so that those most motivated to see safe and effective therapies developed (patients) have the ability to influence and optimize that development. Done right, it’s a win for patients, a win for industry and a win for regulators.

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  11. proslijedio/la je Tweet
    17. pro 2019.
    Odgovor korisnicima i sljedećem broju korisnika:

    Patient advocacy means rolling up or sleeves and doing whatever the hell we have to do to efficiently, ethically and safely bring treatments to those without any. It means changing the default from “no, we can’t” to “let’s figure out a way to do it.” All with extreme urgency.

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  12. 16. pro 2019.

    Reminds me of the battle over generic Lovenox and Copaxone. Originators said, "Impossible!"— these drugs are complex mixtures that aren't fully characterized, and the contribution of each of the drugs' components to their therapeutic effects isn't known. Guess what? Possible!

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  13. 12. pro 2019.

    I do like a bargain, but discount tattoos for Friday the 13th? No thank you.

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  14. 11. pro 2019.
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  15. proslijedio/la je Tweet
    11. pro 2019.

    Travel ban blocked Iranian cancer researchers working in Germany from receiving ASH award. What a disgrace.

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  16. 29. stu 2019.

    Today would be a great day to support patient education!

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  17. 28. stu 2019.

    Happy Thanksgiving, everyone!

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  18. 27. stu 2019.

    I dunno…sweetened condensed milk is not my thing. (Also, I was asked to omit the traditional topping.)

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  19. 27. stu 2019.

    Um. Who’s been eating their flour from the bag?

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  20. 27. stu 2019.

    Making first-ever key lime pie by request. Alice’s Restaurant is the secret ingredient in my pumpkin pie. So naturally…

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  21. proslijedio/la je Tweet

    When you shop at , AmazonSmile donates to The Patients' Academy for Research Advocacy!

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