I have chronic illness & rare disease.
I am too sick to work & am having heart surgery soon.
If Virginia had work requirements for Medicaid I would be dead. Literally. I can't drink water & a central line keeps me alive.
WHY does the @GOP hate disabled people?
#healthcare
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Oh for sure. I don’t agree with work requirements any way. But I wouldn’t want those w/those benefits to think they can’t be covered.
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I just wish SSDI/SSI was workable for most people with disabilities. It’s really not. According to their own algorithms I’m supposed to be a slam dunk for 100% disability, I was fast tracked, and it was still far too slow, punitive, and unworkable.
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I’m glad you finally got approved <3
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I would have if I’d chosen to follow it through, but I want to make the Olympics. That means savings and an investment and forcing my body to be more functional than it has a right to be. SSDI/SSI is incompatible with my goals.
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Very cool, good luck! I’m trying very hard to work with my employer using FMLA & ADA, but even non-profits who support people with disabilities don’t always support employees with them. My biggest fear is not being able to do it, and ending up on SSDI myself.
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My sport (dressage) is both age and somewhat disability-friendly. I’m aiming for LA in 2028. All I need is the right horse, and my area is lousy with cheap, good horses. My training facility and support staff are free as a job perk.
End of conversation
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From there I would have brought the paperwork to a doctor, that would be another month. Then another few months to be evaluated, during which I’d have to sell my car and tiny trailer and dispossess myself because you’re only allowed $3K or so in assets. SSDI/SSI is a joke.
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This is not entirely true. I've been on SSI for years. My car is not counted as an asset because I use it to go to medical appointments.
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See, in April they counted my car and my trailer as assets. It’s an 18-foot travel trailer and the only affordable place I could have lived under SSI. Nice that they let you keep yours, that wouldn’t have happened with me.
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Strange. Medicaid varies by state, even though it's a federal program, and perhaps this does too.
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Might come down to the ability of your caseworker to navigate weird loopholes. Also, I could either have kept the car or the trailer, but not both. So either transportation or a place to live. They recommended I move into a shelter.
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In my case it was definitely the rules. Maybe it was different since my disability is permanent; I'm never going to get better
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Mine is inherited and diagnosed. My blood doesn’t work properly. Why I’m still alive, I have no idea, but I’m lucky enough to avoid the restrictions and not have to sell off my living space to move into a shelter.
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Maybe they were going to count a horse as your transportation to medical appointments
End of conversation
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It took 3 years to get my disability. I had some doctors who thought I was malingering. I finally found a doctor who recognized my problem but still had to get a lawyer to get my ssd. Bob
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I also dislike the attitude that’s put on a person getting disability. There’s an expectation that your life is just over at that point. No art, no side jobs on the rare good days, you’re either abled or you’re chaff. It’s demoralizing and doesn’t need to be.
End of conversation
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