Good news for COVID-19 Long Haulers and CFS patients: after a long wait and extensive preparations, today we started our first set of experiments to see if COVID-19 has a direct effect on mitochondria and if HHV-6 is a potential mediator in this process. Fingers crossed.
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I know it will take a while to see results, but I'll be waiting with anticipation!
If long covid does turn out to be #MECFS by another name for many patients, what an amazing opportunity for your team & others to progress understanding of disease mechanisms.
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Im divided here. On one hand i hope it pans out and gives insight into the mechanisms that disregulate our body into the ME/CFS state. On the other hand i shudder to think of the thounsands that are now descending into this hellish existence if it turns out Covid can cause ME/CFS
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But what if we can finally tease out: that early onset moment? The part that is so hard to- pin down?
For 40 years my ME is mild, I can work, I'm managing it.
then it got real awful.
If collagen is breaking down, the brainstem is gradually- succumbing. StopThat.
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